“I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures.

Holly Saron; Georgia  Cook; Luci Wiggs; Kristina  Dietz; Lucy Bray; Aiswarya Anilkumar; Tony Coffey; Paul Gringras; Will Hardy; Dyfrig Hughes; Sylvine  Lalnunhlimi; Christopher Morris; Deb Pal; Lucy Stibbs-Easton; Catrin Tudur Smith; Bernie Carter

doi:10.1111/hex.70763Digital Object Identifier (DOI)

“I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures.

Holly Saron
, Georgia Cook
, Luci Wiggs
, Kristina Dietz
, Lucy Bray
, Aiswarya Anilkumar
, Tony Coffey
, Paul Gringras
, Will Hardy
, Dyfrig Hughes
, Sylvine Lalnunhlimi
, Christopher Morris
, Deb Pal
, Lucy Stibbs-Easton
, Catrin Tudur Smith
, Bernie Carter

Ysgol Feddygol Gogledd Cymru

University of Edgehill, Omskirk, Lancashire
Department of Sport and Health Sciences, Oxford Brookes University, Oxford
King's College London
Edge Hill University
University of Liverpool
Liverpool Clinical Trials Research Centre
College of Life and Environmental Sciences, University of Exeter, Penryn Campus, Penryn, 9 TR10 9EZ, UK.
Department of Molecular and Clinical Pharmacology, University of Liverpool

Allbwn ymchwil: Cyfraniad at gyfnodolyn › Erthygl › adolygiad gan gymheiriaid

Iaith wreiddiol	Saesneg
Rhif yr erthygl	e70763
Cyfnodolyn	Health Expectations
Dyddiad ar-lein cynnar	14 Gorff 2026
Dynodwyr Gwrthrych Digidol (DOIs)	https://doi.org/10.1111/hex.70763Digital Object Identifier (DOI)
Statws	E-gyhoeddi cyn argraffu - 14 Gorff 2026

Mynediad at Ddogfen

10.1111/hex.70763Digital Object Identifier (DOI)Trwydded: CC BY

Qual_CASTLE_paper-30th_June_2026-AS_ACCEPTEDLlawysgrif awdur wedi’i dderbyn, 634 KB

Dyfynnu hyn

Saron, H., Cook, G., Wiggs, L., Dietz, K., Bray, L., Anilkumar, A., Coffey, T., Gringras, P., Hardy, W., Hughes, D., Lalnunhlimi, S., Morris, C., Pal, D., Stibbs-Easton, L., Smith, C. T., & Carter, B. (2026). “I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures. Health Expectations, erthygl e70763. Cyhoeddiad ar-lein ymlaen llaw. https://doi.org/10.1111/hex.70763Digital Object Identifier (DOI)

@article{324cf03265934ec794a5f95f7657b8ae,

title = "“I didn{\textquoteright}t even associate the two together at all”: a qualitative study of {\textquoteleft}information work{\textquoteright} undertaken by parents and their children with epilepsy to make sense of sleep and seizures.",

author = "Holly Saron and Georgia Cook and Luci Wiggs and Kristina Dietz and Lucy Bray and Aiswarya Anilkumar and Tony Coffey and Paul Gringras and Will Hardy and Dyfrig Hughes and Sylvine Lalnunhlimi and Christopher Morris and Deb Pal and Lucy Stibbs-Easton and Smith, \{Catrin Tudur\} and Bernie Carter",

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Saron, H, Cook, G, Wiggs, L, Dietz, K, Bray, L, Anilkumar, A, Coffey, T, Gringras, P, Hardy, W , Hughes, D, Lalnunhlimi, S, Morris, C, Pal, D, Stibbs-Easton, L, Smith, CT & Carter, B 2026, '“I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures.', Health Expectations. https://doi.org/10.1111/hex.70763Digital Object Identifier (DOI)

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AU - Wiggs, Luci

AU - Dietz, Kristina

AU - Bray, Lucy

AU - Anilkumar, Aiswarya

AU - Coffey, Tony

AU - Gringras, Paul

AU - Hardy, Will

AU - Hughes, Dyfrig

AU - Lalnunhlimi, Sylvine

AU - Morris, Christopher

AU - Pal, Deb

AU - Stibbs-Easton, Lucy

AU - Smith, Catrin Tudur

AU - Carter, Bernie

PY - 2026/7/14

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DO - 10.1111/hex.70763Digital Object Identifier (DOI)

M3 - Article

SN - 1369-6513

JO - Health Expectations

JF - Health Expectations

M1 - e70763

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Saron H, Cook G, Wiggs L, Dietz K, Bray L, Anilkumar A et al. “I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures. Health Expectations. 2026 Gorff 14;e70763. Epub 2026 Gorff 14. doi: 10.1111/hex.70763Digital Object Identifier (DOI)