Profiles of Met and Unmet Needs in People with Dementia According to Caregivers’ Perspective: Results from a European Multicenter Study

Niels Janssen, Ron L. Handels, Sebastian Kohler, Manuel Gonçalves-Pereira, Maria J. Marques, Kate Irving, Louise Hopper, Anja Bieber, Martin Orrell, Geir Selbæk, Mona Michelet, Anders Wimo, Orazio Zanetti, Daniel M. Portolani, Silvia M.A.A. Evers, Frans Verhey, Actifcare Consortium

Allbwn ymchwil: Cyfraniad at gyfnodolynErthygladolygiad gan gymheiriaid

157 Wedi eu Llwytho i Lawr (Pure)

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Objectives
This exploratory study aimed at investigating profiles of care needs in people with mild to moderate dementia and examined variables associated with these profiles.
Design
A longitudinal international cohort study.
Setting and Participants
The baseline data of 447 community-dwelling dyads of people with dementia and their caregivers from the Access to Timely Formal Care (Actifcare) Study were included for analysis.

Methods
A latent class analysis was applied to identify profiles of needs, measured with the Camberwell Assessment of Need for the Elderly as rated by the caregiver. We examined sociodemographic (eg, relative stress scale) and clinical characteristics (eg, neuropsychiatric inventory) associated with these profiles.
Results
Four distinct need profiles were identified through latent class analysis. These comprised a “no need” profile (41% of the sample), a “met psychological needs” profile (25%), a “met social needs” profile (19%), and an “unmet social needs” profile (15%). A larger impact of caregiving on the caregiver's life as indicated by a higher relative stress scale score was associated with the “unmet social needs” profile.
Conclusions and Implications
In this large European sample, there was a subgroup of persons with dementia with high “unmet social needs” whose caregivers simultaneously perceived high stress in their caregiving tasks. Identification of these profiles may help provision of appropriate support for these people.
Iaith wreiddiolSaesneg
Tudalennau (o-i)1609-1616
CyfnodolynJournal of the American Medical Directors Association
Cyfrol21
Rhif cyhoeddi11
Dyddiad ar-lein cynnar14 Gorff 2020
Dynodwyr Gwrthrych Digidol (DOIs)
StatwsCyhoeddwyd - 1 Tach 2020

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