"We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome

Gemma M Griffith; Vasiliki Totsika; Susie Nash; Robert Jones; Richard P Hastings

doi:10.3109/13668250.2012.701729

"We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome

Gemma M Griffith
, Vasiliki Totsika
, Susie Nash
, Robert Jones
, Richard P Hastings

Allbwn ymchwil: Cyfraniad at gyfnodolyn › Erthygl › adolygiad gan gymheiriaid

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BACKGROUND: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.

METHOD: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).

RESULTS: Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.

CONCLUSIONS: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.

Iaith wreiddiol	Saesneg
Tudalennau (o-i)	237-47
Nifer y tudalennau	11
Cyfnodolyn	Journal of Intellectual and Developmental Disability
Cyfrol	37
Rhif cyhoeddi	3
Dynodwyr Gwrthrych Digidol (DOIs)	https://doi.org/10.3109/13668250.2012.701729
Statws	Cyhoeddwyd - Medi 2012

Mynediad at Ddogfen

10.3109/13668250.2012.701729

Dyfynnu hyn

@article{3f18a8008aa34594881c05a1a92164db,

title = "{"}We are all there silently coping{"}: The hidden experiences of parents of adults with Asperger syndrome",

abstract = "BACKGROUND: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.METHOD: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).RESULTS: Six themes emerged from the analysis: (a) providers of {"}hidden{"} support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.CONCLUSIONS: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.",

keywords = "Adaptation, Psychological, Adult, Adult Children, Aged, Asperger Syndrome, Family, Female, Humans, Interpersonal Relations, Interviews as Topic, Male, Middle Aged, Parents, Qualitative Research, Quality of Life, Social Isolation, Social Support, Socioeconomic Factors, Stress, Psychological, Journal Article, Research Support, Non-U.S. Gov't",

author = "Griffith, \{Gemma M\} and Vasiliki Totsika and Susie Nash and Robert Jones and Hastings, \{Richard P\}",

year = "2012",

month = sep,

doi = "10.3109/13668250.2012.701729",

language = "English",

volume = "37",

pages = "237--47",

journal = "Journal of Intellectual and Developmental Disability",

issn = "1366-8250",

publisher = "Informa Healthcare",

number = "3",

}

TY - JOUR

T1 - "We are all there silently coping"

T2 - The hidden experiences of parents of adults with Asperger syndrome

AU - Griffith, Gemma M

AU - Totsika, Vasiliki

AU - Nash, Susie

AU - Jones, Robert

AU - Hastings, Richard P

PY - 2012/9

Y1 - 2012/9

N2 - BACKGROUND: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.METHOD: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).RESULTS: Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.CONCLUSIONS: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.

AB - BACKGROUND: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.METHOD: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).RESULTS: Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.CONCLUSIONS: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.

KW - Adaptation, Psychological

KW - Adult

KW - Adult Children

KW - Aged

KW - Asperger Syndrome

KW - Family

KW - Female

KW - Humans

KW - Interpersonal Relations

KW - Interviews as Topic

KW - Male

KW - Middle Aged

KW - Parents

KW - Qualitative Research

KW - Quality of Life

KW - Social Isolation

KW - Social Support

KW - Socioeconomic Factors

KW - Stress, Psychological

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

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JO - Journal of Intellectual and Developmental Disability

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ER -

"We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome

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