CONHECIMENTO NA DEMÊNCIA: ESTUDO EXPLORATÓRIO COM MUNÍCIPES DE SANTOS/BRASIL

Emanuela B. Torres-Mattos; Deusivania Vieira da Silva Falcao; Patricia Masterson Algar; Catrin Hedd Jones

doi:10.15603/2176-1019/mud.v33.pe2025-014

CONHECIMENTO NA DEMÊNCIA: ESTUDO EXPLORATÓRIO COM MUNÍCIPES DE SANTOS/BRASIL

Translated title of the contribution: KNOWLEDGE IN DEMENTIA: EXPLORATORY STUDY WITH RESIDENTS OF SANTOS/BRAZIL

Emanuela B. Torres-Mattos
, Deusivania Vieira da Silva Falcao
, Patricia Masterson Algar
, Catrin Hedd Jones

School of Health Sciences

Federal University of the State of Sao Paolo
Universidade de São Paulo
University of Worcester

Research output: Contribution to journal › Article › peer-review

4 Downloads (Pure)

Abstract

Introduction: Dementia is a public health problem that compromises functionality and gradually leads to dependence on a caregiver as it progresses, in addition to being fraught with stigmas that negatively affect the lives of the person affected and their family. Providing dementia-friendly initiatives depends on prior knowledge about what people with and without dementia, groups and populations understand about the condition and the needs for a better quality of life.

Method: A cross-sectional study was carried out using an online questionnaire published on social media composed of the following sections: Free and Informed Consent Form (TCLE), socioeconomic profile, questions about dementia and the dementia-friendly community. The data were tabulated in an Excel spreadsheet and statistically analyzed.

Results: 293 people participated in the survey, Of these, 71.1% knew a person with dementia, 91.3% believed that people with dementia suffer prejudice in society and 82.3% had never heard about the Dementia Friendly Community.

Discussion: Santos is a city with a high number of elderly people, estimates for the high number of people with dementia reaffirm the need to implement dementia-friendly initiatives to minimize stigma and improve the quality of life of
the person with dementia and their caregiver.

Conclusion: It was possible to conclude that the population of Baixada Santista experiences the consequences of stigma in dementia, and can benefit from strategies such as the community friendly to people with dementia, which aim to reduce stigma.

Keywords: aging, dementia, social stigma

Translated title of the contribution	KNOWLEDGE IN DEMENTIA: EXPLORATORY STUDY WITH RESIDENTS OF SANTOS/BRAZIL
Original language	Portuguese
Journal	Mudanças – Psicologia da Saúde
Volume	33
DOIs	https://doi.org/10.15603/2176-1019/mud.v33.pe2025-014
Publication status	Published - 13 Nov 2025

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being
SDG 10 Reduced Inequalities
SDG 11 Sustainable Cities and Communities

Keywords

Aging
Dementia
Social Stigma

Access to Document

10.15603/2176-1019/mud.v33.pe2025-014Licence: CC BY-NC

Conhecimento+na+demência+Final published version, 944 KBLicence: CC BY-NC

2 Article

Evaluating the effects of the World Health Organization's online intervention ‘iSupport’ to reduce depression and distress in dementia carers: a multi-centre six-month randomised controlled trial in the UK
Windle, G., Flynn, G., Hoare, Z., Goulden, N., Masterson Algar, P., Edwards, R. T., Anthony, B., Kurana, S., Spector, A., Hughes, G., Proctor, D., Ismail, F., Jackson, K., Egan, K. & Stott, J., Jan 2025, In: Lancet Regional Health - Europe. 48, 101125.
Research output: Contribution to journal › Article › peer-review

Open Access
File
83 Downloads (Pure)
Universal challenges of caring for someone living with dementia: experiences from the UK and Brazil
Masterson Algar, P., Naunton Morgan, B., Jones, C. H., Torres Mattos Bezerra, E. & Windle, G., Mar 2025, Journal of Dementia Care, 33, 2, p. 32-35.
Research output: Contribution to specialist publication › Article

Open Access
File

Cite this

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title = "CONHECIMENTO NA DEM{\^E}NCIA: ESTUDO EXPLORAT{\'O}RIO COM MUN{\'I}CIPES DE SANTOS/BRASIL",

abstract = "Introduction: Dementia is a public health problem that compromises functionality and gradually leads to dependence on a caregiver as it progresses, in addition to being fraught with stigmas that negatively affect the lives of the person affected and their family. Providing dementia-friendly initiatives depends on prior knowledge about what people with and without dementia, groups and populations understand about the condition and the needs for a better quality of life. Method: A cross-sectional study was carried out using an online questionnaire published on social media composed of the following sections: Free and Informed Consent Form (TCLE), socioeconomic profile, questions about dementia and the dementia-friendly community. The data were tabulated in an Excel spreadsheet and statistically analyzed. Results: 293 people participated in the survey, Of these, 71.1\% knew a person with dementia, 91.3\% believed that people with dementia suffer prejudice in society and 82.3\% had never heard about the Dementia Friendly Community. Discussion: Santos is a city with a high number of elderly people, estimates for the high number of people with dementia reaffirm the need to implement dementia-friendly initiatives to minimize stigma and improve the quality of life of the person with dementia and their caregiver. Conclusion: It was possible to conclude that the population of Baixada Santista experiences the consequences of stigma in dementia, and can benefit from strategies such as the community friendly to people with dementia, which aim to reduce stigma. Keywords: aging, dementia, social stigma",

keywords = "Aging, Dementia, Social Stigma",

author = "Torres-Mattos, \{Emanuela B.\} and \{da Silva Falcao\}, \{Deusivania Vieira\} and \{Masterson Algar\}, Patricia and Jones, \{Catrin Hedd\}",

year = "2025",

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day = "13",

doi = "10.15603/2176-1019/mud.v33.pe2025-014",

language = "Portiwgaleg",

volume = "33",

journal = "Mudan{\c c}as {\textendash} Psicologia da Sa{\'u}de",

issn = "2176-1019",

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T1 - CONHECIMENTO NA DEMÊNCIA: ESTUDO EXPLORATÓRIO COM MUNÍCIPES DE SANTOS/BRASIL

AU - Torres-Mattos, Emanuela B.

AU - da Silva Falcao, Deusivania Vieira

AU - Masterson Algar, Patricia

AU - Jones, Catrin Hedd

PY - 2025/11/13

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N2 - Introduction: Dementia is a public health problem that compromises functionality and gradually leads to dependence on a caregiver as it progresses, in addition to being fraught with stigmas that negatively affect the lives of the person affected and their family. Providing dementia-friendly initiatives depends on prior knowledge about what people with and without dementia, groups and populations understand about the condition and the needs for a better quality of life. Method: A cross-sectional study was carried out using an online questionnaire published on social media composed of the following sections: Free and Informed Consent Form (TCLE), socioeconomic profile, questions about dementia and the dementia-friendly community. The data were tabulated in an Excel spreadsheet and statistically analyzed. Results: 293 people participated in the survey, Of these, 71.1% knew a person with dementia, 91.3% believed that people with dementia suffer prejudice in society and 82.3% had never heard about the Dementia Friendly Community. Discussion: Santos is a city with a high number of elderly people, estimates for the high number of people with dementia reaffirm the need to implement dementia-friendly initiatives to minimize stigma and improve the quality of life of the person with dementia and their caregiver. Conclusion: It was possible to conclude that the population of Baixada Santista experiences the consequences of stigma in dementia, and can benefit from strategies such as the community friendly to people with dementia, which aim to reduce stigma. Keywords: aging, dementia, social stigma

AB - Introduction: Dementia is a public health problem that compromises functionality and gradually leads to dependence on a caregiver as it progresses, in addition to being fraught with stigmas that negatively affect the lives of the person affected and their family. Providing dementia-friendly initiatives depends on prior knowledge about what people with and without dementia, groups and populations understand about the condition and the needs for a better quality of life. Method: A cross-sectional study was carried out using an online questionnaire published on social media composed of the following sections: Free and Informed Consent Form (TCLE), socioeconomic profile, questions about dementia and the dementia-friendly community. The data were tabulated in an Excel spreadsheet and statistically analyzed. Results: 293 people participated in the survey, Of these, 71.1% knew a person with dementia, 91.3% believed that people with dementia suffer prejudice in society and 82.3% had never heard about the Dementia Friendly Community. Discussion: Santos is a city with a high number of elderly people, estimates for the high number of people with dementia reaffirm the need to implement dementia-friendly initiatives to minimize stigma and improve the quality of life of the person with dementia and their caregiver. Conclusion: It was possible to conclude that the population of Baixada Santista experiences the consequences of stigma in dementia, and can benefit from strategies such as the community friendly to people with dementia, which aim to reduce stigma. Keywords: aging, dementia, social stigma

KW - Aging

KW - Dementia

KW - Social Stigma

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DO - 10.15603/2176-1019/mud.v33.pe2025-014

M3 - Erthygl

SN - 2176-1019

VL - 33

JO - Mudanças – Psicologia da Saúde

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ER -

CONHECIMENTO NA DEMÊNCIA: ESTUDO EXPLORATÓRIO COM MUNÍCIPES DE SANTOS/BRASIL

Abstract

UN SDGs

Keywords

Access to Document

Fingerprint

Research output

Evaluating the effects of the World Health Organization's online intervention ‘iSupport’ to reduce depression and distress in dementia carers: a multi-centre six-month randomised controlled trial in the UK

Universal challenges of caring for someone living with dementia: experiences from the UK and Brazil

Cite this