Coping with Death and Bereavement: A Proactive Intervention Program for Adults with Intellectual Disability

  • Maria Inmaculada Fernández-Ávalos
  • , Manuel Fernández Alcántara
  • , Francisco Cruz-Quintana
  • , Oliver Turnbull
  • , Rosario Rosario Ferrer-Cascalesa
  • , Maria Nieves Pérez-Marfil

Research output: Contribution to journalArticlepeer-review

Abstract

Introduction
Like the broader population, people with intellectual disability (ID) experience the process of grief after loss of a loved one. However, there are a series of risk factors characteristic of this population that can hinder the development of adaptive grief, including cognitive and affective aspects. The objective of this study was to evaluate the effectiveness of a brief intervention program in people with ID to improve understanding of the concept of death, the grief processes, and adaptive attitudes.

Method
A mixed method design that included a controlled, randomized research design, was used. A total of 38 people with ID participated. The variables measured were: grief, biological and cognitive concept of death.

Results
The program significantly increased understanding in two dimensions of the concept of death, Inevitability and Universality, and demonstrated a greater understanding and healthier attitudes regarding death and grief.

Conclusions
It is recommended that, in future research studies, education on death be worked as early as possible in people with ID, in order to prevent future pathological grief.
Original languageEnglish
Pages (from-to)339-362
JournalJournal of Mental Health Research in Intellectual Disabilities
Volume16
Issue number4
Early online date6 Feb 2023
DOIs
Publication statusPublished - Oct 2023

Keywords

  • intellectual disability
  • concept of death
  • bereavement
  • intervention program

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