“I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures.

Holly Saron; Georgia  Cook; Luci Wiggs; Kristina  Dietz; Lucy Bray; Aiswarya Anilkumar; Tony Coffey; Paul Gringras; Will Hardy; Dyfrig Hughes; Sylvine  Lalnunhlimi; Christopher Morris; Deb Pal; Lucy Stibbs-Easton; Catrin Tudur Smith; Bernie Carter

doi:10.1111/hex.70763Digital Object Identifier (DOI)

“I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures.

Holly Saron
, Georgia Cook
, Luci Wiggs
, Kristina Dietz
, Lucy Bray
, Aiswarya Anilkumar
, Tony Coffey
, Paul Gringras
, Will Hardy
, Dyfrig Hughes
, Sylvine Lalnunhlimi
, Christopher Morris
, Deb Pal
, Lucy Stibbs-Easton
, Catrin Tudur Smith
, Bernie Carter

North Wales Medical School

University of Edge Hill
Oxford Brookes University
King's College London
Edge Hill University
University of Liverpool
Liverpool Clinical Trials Research Centre
University of Exeter
University of Liverpool

Research output: Contribution to journal › Article › peer-review

Original language	English
Article number	e70763
Journal	Health Expectations
Early online date	14 Jul 2026
DOIs	https://doi.org/10.1111/hex.70763Digital Object Identifier (DOI)
Publication status	E-pub ahead of print - 14 Jul 2026

Access to Document

10.1111/hex.70763Digital Object Identifier (DOI)Licence: CC BY

Qual_CASTLE_paper-30th_June_2026-AS_ACCEPTEDAccepted author manuscript, 634 KB

Cite this

Saron, H., Cook, G., Wiggs, L., Dietz, K., Bray, L., Anilkumar, A., Coffey, T., Gringras, P., Hardy, W., Hughes, D., Lalnunhlimi, S., Morris, C., Pal, D., Stibbs-Easton, L., Smith, C. T., & Carter, B. (2026). “I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures. Health Expectations, Article e70763. Advance online publication. https://doi.org/10.1111/hex.70763Digital Object Identifier (DOI)

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author = "Holly Saron and Georgia Cook and Luci Wiggs and Kristina Dietz and Lucy Bray and Aiswarya Anilkumar and Tony Coffey and Paul Gringras and Will Hardy and Dyfrig Hughes and Sylvine Lalnunhlimi and Christopher Morris and Deb Pal and Lucy Stibbs-Easton and Smith, \{Catrin Tudur\} and Bernie Carter",

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Saron, H, Cook, G, Wiggs, L, Dietz, K, Bray, L, Anilkumar, A, Coffey, T, Gringras, P, Hardy, W , Hughes, D, Lalnunhlimi, S, Morris, C, Pal, D, Stibbs-Easton, L, Smith, CT & Carter, B 2026, '“I didn’t even associate the two together at all”: a qualitative study of ‘information work’ undertaken by parents and their children with epilepsy to make sense of sleep and seizures.', Health Expectations. https://doi.org/10.1111/hex.70763Digital Object Identifier (DOI)

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AU - Dietz, Kristina

AU - Bray, Lucy

AU - Anilkumar, Aiswarya

AU - Coffey, Tony

AU - Gringras, Paul

AU - Hardy, Will

AU - Hughes, Dyfrig

AU - Lalnunhlimi, Sylvine

AU - Morris, Christopher

AU - Pal, Deb

AU - Stibbs-Easton, Lucy

AU - Smith, Catrin Tudur

AU - Carter, Bernie

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