‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry.

Camic, P., Sullivan, M. P., Harding, E., Rossi-Harries, S., Grillo, A., McKee-Jackson, R., Stott, J., Brotherhood, E., Windle, G. & Crutch, S., 17 Feb 2024, In: Healthcare. 12, 4, 485.

Research output: Contribution to journal › Article › peer-review

The Diagnostic Pathway Experiences of People Living with Rare Dementia and Their Family Caregivers: A Cross-Sectional Mixed Methods Study Using Qualitative and Economic Analyses

Davies Abbott, I., Anthony, B., Jackson, K., Windle, G. & Edwards, R. T., 16 Feb 2024, In: International Journal of Environmental Research and Public Health. 21, 2, 231.

Research output: Contribution to journal › Article › peer-review

Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias

Naunton Morgan, B., Windle, G., Lamers, C., Brotherhood, E. & Crutch, S., 28 Dec 2023, In: International Journal of Environmental Research and Public Health. 21, 1, 19 p., 47.

Research output: Contribution to journal › Article › peer-review

'I have never bounced back': resilience and living with dementia

Windle, G., Roberts, J., MacLeod, C., Algar-Skaife, K., Sullivan, M. P., Brotherhood, E., Jones, C. H. & Stott, J., 2 Dec 2023, In: Aging and Mental Health. 27, 12, p. 2355-2367 13 p.

Research output: Contribution to journal › Article › peer-review

Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers

Masterson Algar, P., Egan, K., Flynn, G., Hughes, G., Spector, A., Stott, J. & Windle, G., 23 Nov 2023, In: International Journal of Environmental Research and Public Health. 20, 23, 15 p., 7103.

Research output: Contribution to journal › Article › peer-review

Knowledge Is Power: Utilizing Human-Centered Design Principles with People Living with Dementia to Co-Design a Resource and Share Knowledge with Peers

Roberts, J., Jones, C. H. & Windle, G., 18 Oct 2023, In: International Journal of Environmental Research and Public Health. 20, 20, 6937.

Research output: Contribution to journal › Article › peer-review

Better Living with Non‑memory‑led Dementia: protocol for a feasibility randomised controlled trial of a web‑based caregiver educational programme

Suárez‑González, A., John, A., Brotherhood, E., Camic, P., McKee‐Jackson, R., Melville, M., Sullivan, M. P., Edwards, R. T., Windle, G., Crutch, S., Hoare, Z. & Stott, J., 11 Oct 2023, In: Pilot and Feasibility Studies. 9, 1, 13 p., 172.

Research output: Contribution to journal › Article › peer-review

Situating support for people living with rarer forms of dementia

Sullivan, M. P., Camic, P., Harding, E., Stott, J., Windle, G., Grillo, A. & Crutch, S., 6 Oct 2023, In: BMC Geriatrics. 23, 1, p. 627 627.

Research output: Contribution to journal › Article › peer-review

Development of an item pool for a patient reported outcome measure of resilience for people living with dementia

Roberts, J., MacLeod, C., Hoare, Z., Sullivan, M. P., Brotherhood, E., Stott, J. & Windle, G., 27 Sept 2023, In: Journal of Patient Reported Outcomes. 7, 1, 96.

Research output: Contribution to journal › Article › peer-review

‘The oxygen of shared experience’: exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias

Harding, E., Harries, S., Alterkawi, S., Waddington, C., Grillo, A., Wood, O., Brotherhood, E., Windle, G., Sullivan, M. P., Camic, P., Stott, J. & Crutch, S., 31 Mar 2023, (E-pub ahead of print) In: Aging and Mental Health. 17 p.

Research output: Contribution to journal › Article › peer-review

Dementia in rural settings: A scoping review exploring the personal experiences of people with dementia and their carers

Williams, J., Windle, G., Story, A., Brotherhood, E., Camic, P., Crutch, S., Stott, J., Sullivan, M. P. & Grillo, A., 8 Mar 2023, (E-pub ahead of print) In: Ageing and Society. 30 p.

Research output: Contribution to journal › Article › peer-review

From deficits to possibilities: the role of resilience

Windle, G. & Roberts, J., 1 Mar 2023, In: Journal of Dementia Care. 21, 2, p. 33-35

Research output: Contribution to journal › Article › peer-review

iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers

Masterson-Algar, P., Egan, K., Flynn, G., Hughes, G., Spector, A., Stott, J. & Windle, G., 22 Dec 2022, In: International Journal of Environmental Research and Public Health. 20, 1, p. 127 1 p., 127.

Research output: Contribution to journal › Article › peer-review

A systematic review and psychometric evaluation of resilience measurement scales for people living with dementia and their carers

Windle, G., MacLeod, C., Algar-Skaife, K., Stott, J., Waddington, C., Camic, P., Sullivan, M. P., Brotherhood, E. & Crutch, S., 19 Nov 2022, In: BMC Medical Research Methodology. 22, 41 p., 298.

Research output: Contribution to journal › Article › peer-review

Peer support for people living with rare or young onset dementia: An integrative review

Sullivan, M. P., Williams, V., Grillo, A., Mackee-Jackson, R., Camic, P., Windle, G., Stott, J., Brotherhood, E. & Crutch, S., Nov 2022, In: Dementia: the international journal of social research and practice. 21, 8, p. 2700–2726 27 p.

Research output: Contribution to journal › Article › peer-review

A qualitative systematic review of the role of families in supporting communication in people with dementia.

Braithwaite- Stewart, L., Jones, C. H. & Windle, G., 23 Sept 2022, In: International Journal of Language and Communication Disorders. 57, 5, p. 1130-1153

Research output: Contribution to journal › Article › peer-review

Effects of an e-health intervention 'iSupport' for reducing distress of dementia carers: protocol for a randomised controlled trial and feasibility study

Windle, G., Flynn, G., Hoare, Z., Masterson-Algar, P., Egan, K., Edwards, R. T., Jones, C., Spector, A., Algar-Skaife, K., Hughes, G., Brocklehurst, P., Goulden, N., Skelhorn, D. & Stott, J., 21 Sept 2022, In: BMJ Open. 12, 9, p. e064314

Research output: Contribution to journal › Article › peer-review

eHealth and Web-Based Interventions for Informal Carers of People With Dementia in the Community: Umbrella Review

Naughton Morgan, B., Windle, G., Sharp, R. & Lamers, C., 22 Jul 2022, In: Journal of Medical Internet Research. 24, 7, 15 p., e36727.

Research output: Contribution to journal › Article › peer-review

The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

Waddington, C., Harding, E., Brotherhood, E., Davies Abbott, I., Barker, S., Camic, P., Ezeofor, V., Gardner, H., Grillo, A., Hardy, C., Hoare, Z., McKee-Jackson, R., Moore, K., O'Hara, T., Roberts, J., Rossi-Harries, S., Suarez-Gonzalez, A., Sullivan, M. P., Edwards, R. T., Van Der Byl Williams, M., Walton, J., Willoughby, A., Windle, G., Winrow, E., Wood, O., Zimmermann, N., Crutch, S. & Stott, J., 20 Jul 2022, In: JMIR Research Protocols. 11, 7, 13 p.

Research output: Contribution to journal › Article › peer-review

The Development of Virtual Videoconference-Based Support for People Living with Rare Dementias and Their Carers: Protocol for Support Group Evaluation

Waddington, C., Harding, E., Brotherhood, E., Davies Abbott, I., Barker, S., Camic, P. M., Ezeofor, V., Gardner, H., Grillo, A., Hardy, C., Hoare, Z., McKee-Jackson, R., Moore, K., O'Hara, T., Roberts, J., Rossi-Harries, S., Saurez-Gonzalez, A., Pat Sullivan, M., Edwards, R. T., Van Der Byl Williams, M., Walton, J., Willoughby, A., Windle, G., Winrow, E., Wood, O., Zimmermann, N., Crutch, S. J. & Stott, J., 20 Jul 2022, In: JMIR Research Protocols. 11, 7

Research output: Contribution to journal › Article › peer-review

When One Health Meets the United Nations Ocean Decade: Global Agendas as a Pathway to Promote Collaborative Interdisciplinary Research on Human-Nature Relationships

Masterson Algar, P., Jenkins, S., Windle, G., Morris-Webb, E., Takahashi, C. K., Burke, T., Rosa, I., Martinez, A. S., Torres-Mattos, E. B., Taddei, R., Morrison, V., Kasten, P., Bryning, L., Cruz de Oliveira, N. R., Gonçalves, L. R., Skov, M., Beynon-Davies, C., Bumbeer, J., Saldiva, P. H. N., Leão, E. & Christofoletti, R., 6 Apr 2022, In: Frontiers in Psychology. 13, 809009.

Research output: Contribution to journal › Article › peer-review

New insights into the genetic etiology of Alzheimer’s disease and related dementias

EADB, GR@ACE, DEGESCO, EADI, GERAD, Demgene, FinnGen, ADGC, CHARGE, Bellenguez, C., MacLeod, C. A., Windle, G., Woods, B., Farrer, L. A., Psaty, B. M., Ghanbari, M., Raj, T., Sachdev, P., Mather, K., Jessen, F., Ikram, M. A., de Mendonça, A., Hort, J., Tsolaki, M., Pericak-Vance, M. A., Amouyel, P., Williams, J., Frikke-Schmidt, R., Clarimón, J., Deleuze, J-F., Rossi, G., Seshadri, S., Andreassen, O. A., Ingelsson, M., Hiltunen, M., Sleegers, K., Schellenberg, G. D., van Duijn, C. M., Sims, R., van der Flier, W. M., Ruiz, A., Ramirez, A. & Lambert, J-C., Apr 2022, In: Nature Genetics. 54, 4, p. 412-436 25 p.

Research output: Contribution to journal › Article › peer-review

Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review

Masterson Algar, P., Hyde, M., Cheshire Allen, M., Keating, N. & Windle, G., 1 Feb 2022, In: Dementia: International Journal of Social Research and Practice. 21, 2, p. 648-676 29 p.

Research output: Contribution to journal › Review article › peer-review

Living in a care home during COVID-19: A case study of one person living with dementia

Davies Abbott, I., Jones, C. H. & Windle, G., 10 Dec 2021, In: Quality in Ageing and Older Adults. 22, 3-4, p. 147-158

Research output: Contribution to journal › Article › peer-review

A longitudinal exploration of mental health resilience, cognitive impairment and loneliness

Windle, G., Hoare, Z., Woods, B., Huisman, M. & Burholt, V., Jul 2021, In: International Journal of Geriatric Psychiatry. 36, 7, p. 1020-1028 9 p.

Research output: Contribution to journal › Article › peer-review

Common variants in Alzheimer’s disease and risk stratification by polygenic risk scores

de Rojas, I., Moreno-Grau, S., Tesi, N., Grenier-Boley, B., Andrade, V., Jansen, I. E., Pedersen, N. L., Stringa, N., Zettergren, A., Hernández, I., Montrreal, L., Antúnez, C., Antonell, A., Tankard, R. M., Bis, J. C., Sims, R., Bellenguez, C., Quintela, I., González-Perez, A., Calero, M., Franco-Macías, E., Macías, J., Blesa, R., Cervera-Carles, L., Menéndez-González, M., Frank-García, A., Royo, J. L., Moreno, F., Huerto Vilas, R., Baquero, M., Diez-Fairen, M., Lage, C., García-Madrona, S., García-González, P., Alarcón-Martín, E., Valero, S., Sotolongo-Grau, O., Ullgren, A., Naj, A. C., Lemstra, A. W., Benaque, A., Pérez-Cordón, A., Benussi, A., Rábano, A., Padovani, A., Squassina, A., de Mendonça, A., Arias Pastor, A., Kok, A. A. L., Meggy, A., Pastor, A. B., Espinosa, A., Corma-Gómez, A., Martín Montes, A., Sanabria, Á., DeStefano, A. L., Schneider, A., Haapasalo, A., Kinhult Ståhlbom, A., Tybjærg-Hansen, A., Hartmann, A. M., Spottke, A., Corbatón-Anchuelo, A., Rongve, A., Borroni, B., Arosio, B., Nacmias, B., Nordestgaard, B. G., Kunkle, B. W., Charbonnier, C., Abdelnour, C., Masullo, C., Martínez Rodríguez, C., Muñoz-Fernandez, C., Dufouil, C., Graff, C., Ferreira, C. B., Chillotti, C., Reynolds, C. A., Fenoglio, C., Van Broeckhoven, C., Clark, C., Pisanu, C., Satizabal, C. L., Holmes, C., Buiza-Rueda, D., Aarsland, D., Rujescu, D., Alcolea, D., Galimberti, D., Wallon, D., Seripa, D., Grünblatt, E., Dardiotis, E., Düzel, E., Scarpini, E., Conti, E., Rubino, E., Gelpi, E., Rodriguez-Rodriguez, E., Duron, E., Boerwinkle, E., Ferri, E., Tagliavini, F., Küçükali, F., Pasquier, F., Sanchez-Garcia, F., Mangialasche, F., Jessen, F., Nicolas, G., Selbæk, G., Ortega, G., Chêne, G., Hadjigeorgiou, G., Rossi, G., Spalletta, G., Giaccone, G., Grande, G., Binetti, G., Papenberg, G., Hampel, H., Bailly, H., Zetterberg, H., Soininen, H., Karlsson, I. K., Alvarez, I., Appollonio, I., Giegling, I., Skoog, I., Saltvedt, I., Rainero, I., Rosas Allende, I., Hort, J., Diehl-Schmid, J., Van Dongen, J., Vidal, J-S., Lehtisalo, J., Wiltfang, J., Thomassen, J. Q., Kornhuber, J., Haines, J. L., Vogelgsang, J., Pineda, J. A., Fortea, J., Popp, J., Deckert, J., Buerger, K., Morgan, K., Fließbach, K., Sleegers, K., Molina-Porcel, L., Kilander, L., Weinhold, L., Farrer, L. A., Wang, L-S., Kleineidam, L., Farotti, L., Parnetti, L., Tremolizzo, L., Hausner, L., Benussi, L., Froelich, L., Ikram, M. A., Deniz-Naranjo, M. C., Tsolaki, M., Rosende-Roca, M., Löwenmark, M., Hulsman, M., Spallazzi, M., Pericak-Vance, M. A., Esiri, M., Bernal Sánchez-Arjona, M., Dalmasso, M. C., Martínez-Larrad, M. T., Arcaro, M., Nöthen, M. M., Fernández-Fuertes, M., Dichgans, M., Ingelsson, M., Herrmann, M. J., Scherer, M., Vyhnalek, M., Kosmidis, M. H., Yannakoulia, M., Schmid, M., Ewers, M., Heneka, M. T., Wagner, M., Scamosci, M., Kivipelto, M., Hiltunen, M., Zulaica, M., Alegret, M., Fornage, M., Roberto, N., van Schoor, N. M., Seidu, N. M., Banaj, N., Armstrong, N. J., Scarmeas, N., Scherbaum, N., Goldhardt, O., Hanon, O., Peters, O., Skrobot, O. A., Quenez, O., Lerch, O., Bossù, P., Caffarra, P., Dionigi Rossi, P., Sakka, P., Hoffmann, P., Holmans, P. A., Fischer, P., Riederer, P., Yang, Q., Marshall, R., Kalaria, R. N., Mayeux, R., Vandenberghe, R., Cecchetti, R., Ghidoni, R., Frikke-Schmidt, R., Sorbi, S., Hägg, S., Engelborghs, S., Helisalmi, S., Botne Sando, S., Kern, S., Archetti, S., Boschi, S., Fostinelli, S., Gil, S., Mendoza, S., Mead, S., Ciccone, S., Djurovic, S., Heilmann-Heimbach, S., Riedel-Heller, S., Kuulasmaa, T., del Ser, T., Lebouvier, T., Polak, T., Ngandu, T., Grimmer, T., Bessi, V., Escott-Price, V., Giedraitis, V., Deramecourt, V., Maier, W., Jian, X., Pijnenburg, Y. A. L., Smith, A. D., Saenz, A., Bizzarro, A., Lauria, A., Vacca, A., Solomon, A., Anastasiou, A., Richardson, A., Boland, A., Koivisto, A., Daniele, A., Greco, A., Marianthi, A., McGuinness, B., Fin, B., Ferrari, C., Custodero, C., Ferrarese, C., Ingino, C., Mangone, C., Reyes Toso, C., Martínez, C., Cuesta, C., Muchnik, C., Joachim, C., Ortiz, C., Besse, C., Johansson, C., Zoia, C. P., Laske, C., Anastasiou, C., Palacio, D. L., Politis, D. G., Janowitz, D., Craig, D., Mann, D. M., Neary, D., Jürgen, D., Daian, D., Belezhanska, D., Kohler, E., Castaño, E. M., Koutsouraki, E., Chipi, E., De Roeck, E., Costantini, E., Vardy, E. R. L. C., contributors, EADB., MacLeod, C., Woods, B. & Windle, G., 7 Jun 2021, In: Nature Communications. 12, 1, 3417.

Research output: Contribution to journal › Article › peer-review

Rare dementia support in rural and remote areas

Windle, G., Roberts, J. & Sullivan, M. P., Jan 2021, In: Journal of Dementia Care. 29, 1, p. 22-24

Research output: Contribution to journal › Article

The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study

Casey, D., Gallager, N., Devane, D., Woods, B., Murphy, K., Smyth, S., Newell, J., Murphy, A. W., Clarke, C., Foley, T., Timmons, F., Droes, R-M., O'Halloran, M., Windle, G., Irving Lupton, K., Domegan, CH., O'Shea, E., Dolan, P. & Doyle, P., 16 Nov 2020, In: BMC Pilot and Feasibility Studies. 6, 177, p. 1-16 16 p., 6.

Research output: Contribution to journal › Article › peer-review

Resilience in older persons: A systematic review of the conceptual literature

Angevaare, M. J., Roberts, J., van Hout, H. P. J., Smalbrugge, M., Schoonmade, L. J., Windle, G. & Hertogh, C. M. P. M., Nov 2020, In: Ageing Research Reviews. 63, 101144.

Research output: Contribution to journal › Article › peer-review

Technology-Mediated Communication in Familial Relationships: Moderated-Mediation Models of Isolation and Loneliness

CFAS-Wales study team, 1 Oct 2020, In: Gerontologist. 60, 7, p. 1202-1212 11 p.

Research output: Contribution to journal › Article › peer-review

The influence of life experiences on the development of resilience in older people with co-morbid health problems.

Windle, G., Bennett, K., MacLeod, C. & Wales research team, CFAS., 22 Sept 2020, In: Frontiers in Medicine. 7, 13 p., 502314.

Research output: Contribution to journal › Article › peer-review

Using art for public engagement: reflections on the Dementia and Imagination project

Tischler, V., Howson-Griffiths, T., Jones, C. & Windle, G., 1 Sept 2020, In: Arts & Health. 12, 3, p. 270-277

Research output: Contribution to journal › Article › peer-review

How Can the Arts Influence the Attitudes of Dementia Caregivers? A Mixed-Methods Longitudinal Investigation

Windle, G., Woods, B., Caulfield, M. & Joling, K., Sept 2020, In: Gerontologist. 60, 6, p. 1103-1114 12 p.

Research output: Contribution to journal › Article › peer-review

Enhancing communication between dementia care staff and their residents: an arts-inspired intervention

Windle, G., Algar-Skaife, K., Caulfield, M., Pickering-Jones, L., Killick, J., Zeilig, H. & Tischler, V., 2 Aug 2020, In: Aging and Mental Health. 24, 8, p. 1306-1315 10 p.

Research output: Contribution to journal › Article › peer-review

Protocol for the Rare Dementia Support Impact Study: RDS Impact

Brotherhood, E., Stott, J., Windle, G., Barker, S., Culley, S., Harding, E., Camic, P. M., Caulfield, M., Ezeofor, V., Hoare, Z., McKee-Jackson, R., Roberts, J., Sharp, R., Suarez-Gonzalez, A., Sullivan, M. P., Edwards, R. T., Walton, J., Waddington, C., Winrow, E. & Crutch, S. J., Aug 2020, In: International Journal of Geriatric Psychiatry. 35, 8, p. 833-841 9 p.

Research output: Contribution to journal › Article › peer-review

Evaluation of an intervention targeting loneliness and isolation for older people in North Wales

Roberts, J. & Windle, G., 1 May 2020, In: Perspectives in Public Health. 140, 3, p. 153-161

Research output: Contribution to journal › Article › peer-review

Implementing Digital Life Story Work for People with Dementia: Relevance of Context to User Experience

O Philbin, L., Woods, B. & Windle, G., 10 Mar 2020, In: International Journal of Reminiscence and Life Review. 7, 1, p. 22-32

Research output: Contribution to journal › Article › peer-review

Dementia and Imagination: A social return on investment analysis framework for art activities for people living with dementia

Jones, C., Windle, G. & Edwards, R. T., Feb 2020, In: Gerontologist. 60, 1, p. 112-123

Research output: Contribution to journal › Article › peer-review

The role of the visual arts in the resilience of people living with dementia in care homes

Newman, A., Goulding, A., Davenport, B. & Windle, G., Nov 2019, In: Ageing and Society. 39, 11, p. 2465-2482

Research output: Contribution to journal › Article › peer-review

Re-thinking social exclusion in later life: A case for a new framework for measurement

MacLeod, C., Ross, A., Sacker, A., Netuveli, G. & Windle, G., Jan 2019, In: Ageing and Society. 39, 1, p. 74-111 38 p.

Research output: Contribution to journal › Article › peer-review

Conceptualising and Understanding Artistic Creativity in the Dementias: Interdisciplinary Approaches to Research and Practise

Created Out of Mind Team, Camic, P. M., Crutch, S. J., Murphy, C., Firth, N., Harding, E., Harrison, C. R., Howard, S., Strohmaier, S., van Leeuwen, J., West, J., Windle, G., Wray, S. & Zeilig, H., 3 Oct 2018, In: Frontiers in Psychology. 9, p. 1-12 12 p., 1842.

Research output: Contribution to journal › Article › peer-review

Exploring the theoretical foundations of visual art programmes for people living with dementia

Windle, G., Gregory, S., Howson-Griffiths, T., Newman, A., O'Brien, D. & Goulding, A., 1 Aug 2018, In: Dementia: International Journal of Social Research and Practice. p. 1-20 20 p.

Research output: Contribution to journal › Article › peer-review

A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025

Pickett, J., Bird, C., Ballard, C., Banerjee, S., Brayne, C., Gowan, K., Clare, L., Comas-Herrera, A., Corner, L., Daley, S., Knapp, M., Lafortune, L., Livingston, G., Manthorpe, J., Marchant, N., Moriarty, J., Robinson, L., van Lynden, C., Windle, G., Woods, R., Gray, K. & Walton, C., Jul 2018, In: International Journal of Geriatric Psychiatry. 33, 7, p. 900-906

Research output: Contribution to journal › Article › peer-review

Seeking assistance in later life: How do older people evaluate their need for assistance?

Canvin, K., MacLeod, C., Windle, G. & Sacker, A., 1 May 2018, In: Age and Ageing. 47, 3, p. 466-473

Research output: Contribution to journal › Article › peer-review

The impact of a visual arts program on quality of life, communication and well-being of people living with dementia: A mixed-methods longitudinal investigation

Windle, G., Joling, K., Howson-Griffiths, T., Woods, R., Jones, C., van der Ven, P., Newman, A. & Parkinson, C., 8 Nov 2017, In: International Psychogeriatrics. p. 1-15 15 p.

Research output: Contribution to journal › Article › peer-review

Preparatory planning framework for Created Out of Mind: Shaping perceptions of dementia through art and science

Brotherhood, E., Ball, P., Camic, P. M., Evans, C., Fox, N., Murphy, C., Walsh, F., West, J., Windle, G., Billiald, S. & Firth, N., 6 Nov 2017, In: Wellcome Open Research. 2, 108, 108.

Research output: Contribution to journal › Article › peer-review