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Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR). / Horton, Mike C; Oyebode, Jan; Clare, Linda et al.
Yn: Gerontologist, Cyfrol 61, Rhif 3, 03.04.2021, t. e1-e11.

Allbwn ymchwil: Cyfraniad at gyfnodolynErthygladolygiad gan gymheiriaid

HarvardHarvard

Horton, MC, Oyebode, J, Clare, L, Megson, M, Shearsmith, L, Brayne, C, Kind, P, Hoare, Z, Al Janabi, H, Hewison, V, Tennant, A & Wright, P 2021, 'Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR)', Gerontologist, cyfrol. 61, rhif 3, tt. e1-e11. https://doi.org/10.1093/geront/gnz136

APA

Horton, M. C., Oyebode, J., Clare, L., Megson, M., Shearsmith, L., Brayne, C., Kind, P., Hoare, Z., Al Janabi, H., Hewison, V., Tennant, A., & Wright, P. (2021). Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR). Gerontologist, 61(3), e1-e11. https://doi.org/10.1093/geront/gnz136

CBE

Horton MC, Oyebode J, Clare L, Megson M, Shearsmith L, Brayne C, Kind P, Hoare Z, Al Janabi H, Hewison V, et al. 2021. Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR). Gerontologist. 61(3):e1-e11. https://doi.org/10.1093/geront/gnz136

MLA

VancouverVancouver

Horton MC, Oyebode J, Clare L, Megson M, Shearsmith L, Brayne C et al. Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR). Gerontologist. 2021 Ebr 3;61(3):e1-e11. Epub 2019 Tach 5. doi: 10.1093/geront/gnz136

Author

Horton, Mike C ; Oyebode, Jan ; Clare, Linda et al. / Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR). Yn: Gerontologist. 2021 ; Cyfrol 61, Rhif 3. tt. e1-e11.

RIS

TY - JOUR

T1 - Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR)

AU - Horton, Mike C

AU - Oyebode, Jan

AU - Clare, Linda

AU - Megson, Molly

AU - Shearsmith, Leanne

AU - Brayne, Carol

AU - Kind, Paul

AU - Hoare, Zoe

AU - Al Janabi, Hareth

AU - Hewison, Val

AU - Tennant, Alan

AU - Wright, Penny

PY - 2021/4/3

Y1 - 2021/4/3

N2 - Abstract Background and Objectives A 2008 European consensus on research outcome measures in dementia care concluded that measurement of carer quality of life (QoL) was limited. Three systematic reviews (2012, 2017, and 2018) of dementia carer outcome measures found existing instruments wanting. In 2017, recommendations were published for developing reliable measurement tools of carers’ needs for research and clinical application. The aim of this study was to develop a new instrument to measure the QoL of dementia carers (family/friends). Methods Items were generated directly from carers following an inductive needs-led approach. Carers (n = 566) from 22 English and Welsh locations then completed the items and comparator measures at three time points. Rasch, factor, and psychometric (reliability, validity, responsiveness, and minimally important differences [MIDs]) analyses were undertaken. Results Following factor analysis, the pool of 70 items was refined to three independent scales: primary SIDECAR-D (direct impact of caring upon carer QOL, 18 items), secondary SIDECAR-I (indirect impact, 10 items), and SIDECAR-S (support and information, 11 items). All three scales satisfy Rasch model assumptions. SIDECAR-D, I, S psychometrics: reliability (internal ≥ .70; test–retest ≥ .85); convergent validity (as hypothesized); responsiveness (effect sizes: D: moderate; I and S: small); MIDs (D = 9/100, I = 10/100, S = 11/100). Discussion and Implications SIDECAR scales demonstrate robust measurement properties, meeting COSMIN quality standards for study design and psychometrics. SIDECAR provides a theoretically based needs-led QoL profile specifically for dementia carers. SIDECAR is free for use in public health, social care, and voluntary sector services, and not-for-profit organizations.

AB - Abstract Background and Objectives A 2008 European consensus on research outcome measures in dementia care concluded that measurement of carer quality of life (QoL) was limited. Three systematic reviews (2012, 2017, and 2018) of dementia carer outcome measures found existing instruments wanting. In 2017, recommendations were published for developing reliable measurement tools of carers’ needs for research and clinical application. The aim of this study was to develop a new instrument to measure the QoL of dementia carers (family/friends). Methods Items were generated directly from carers following an inductive needs-led approach. Carers (n = 566) from 22 English and Welsh locations then completed the items and comparator measures at three time points. Rasch, factor, and psychometric (reliability, validity, responsiveness, and minimally important differences [MIDs]) analyses were undertaken. Results Following factor analysis, the pool of 70 items was refined to three independent scales: primary SIDECAR-D (direct impact of caring upon carer QOL, 18 items), secondary SIDECAR-I (indirect impact, 10 items), and SIDECAR-S (support and information, 11 items). All three scales satisfy Rasch model assumptions. SIDECAR-D, I, S psychometrics: reliability (internal ≥ .70; test–retest ≥ .85); convergent validity (as hypothesized); responsiveness (effect sizes: D: moderate; I and S: small); MIDs (D = 9/100, I = 10/100, S = 11/100). Discussion and Implications SIDECAR scales demonstrate robust measurement properties, meeting COSMIN quality standards for study design and psychometrics. SIDECAR provides a theoretically based needs-led QoL profile specifically for dementia carers. SIDECAR is free for use in public health, social care, and voluntary sector services, and not-for-profit organizations.

KW - Carers

KW - Dementia

KW - Quality of Life

KW - Needs-led

KW - Rasch measurement

KW - Psychometrics

U2 - 10.1093/geront/gnz136

DO - 10.1093/geront/gnz136

M3 - Article

VL - 61

SP - e1-e11

JO - Gerontologist

JF - Gerontologist

SN - 0016-9013

IS - 3

ER -