TY - JOUR

T1 - Synthesis of health promotion concepts in children's palliative care

AU - Bennett, Virginia

AU - Hain, Richard

AU - Pritchard, Aaron

AU - Noyes, Jane

PY - 2021/12/17

Y1 - 2021/12/17

N2 - Background: Palliative care improves the health of children with a life-limiting condition and appears to draw implicitly on concepts shared with a model of health promotion. However, to date there has been no scrutiny about how this relationship may shape understanding about children's palliative care.Aim: To explore the influence of health promoting concepts on children's palliative care models, policies and guidelines.Data sources: Health and social care databases were searched for policies, models and guidelines published between 2000-2018. Additional searches of professional national and international healthcare websites, children's palliative care charities and UK and Ireland government websites were conducted.Methods: A best fit framework synthesis was used.Findings: A total of 55 policies and guidelines were reviewed for the framework synthesis. Eight themes were generated: (1) health promoting children's palliative care policy and guidelines; (2) planning ahead; (3) creating a supportive environment; (4) enabling coping and independence; (5) reorienting children's palliative care sectors; (6) the lengthening trajectory of need for support; (7) strengthening community engagement in children's palliative care; and (8) quality of life and value-based ideologies.Conclusion: The best fit framework synthesis confirmed a conceptual relationship between children's palliative care and health promotion. This is captured in a new model that will extend professionals' understanding.

AB - Background: Palliative care improves the health of children with a life-limiting condition and appears to draw implicitly on concepts shared with a model of health promotion. However, to date there has been no scrutiny about how this relationship may shape understanding about children's palliative care.Aim: To explore the influence of health promoting concepts on children's palliative care models, policies and guidelines.Data sources: Health and social care databases were searched for policies, models and guidelines published between 2000-2018. Additional searches of professional national and international healthcare websites, children's palliative care charities and UK and Ireland government websites were conducted.Methods: A best fit framework synthesis was used.Findings: A total of 55 policies and guidelines were reviewed for the framework synthesis. Eight themes were generated: (1) health promoting children's palliative care policy and guidelines; (2) planning ahead; (3) creating a supportive environment; (4) enabling coping and independence; (5) reorienting children's palliative care sectors; (6) the lengthening trajectory of need for support; (7) strengthening community engagement in children's palliative care; and (8) quality of life and value-based ideologies.Conclusion: The best fit framework synthesis confirmed a conceptual relationship between children's palliative care and health promotion. This is captured in a new model that will extend professionals' understanding.

KW - Child

KW - Health Policy

KW - Health Promotion

KW - Humans

KW - Ireland

KW - Palliative Care

KW - Quality of Life

U2 - 10.12968/ijpn.2021.27.10.490

DO - 10.12968/ijpn.2021.27.10.490

M3 - Article

C2 - 34919416

VL - 27

SP - 490

EP - 503

JO - International Journal of Palliative Nursing

JF - International Journal of Palliative Nursing

SN - 1357-6321

IS - 10

ER -