TY - JOUR

T1 - The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study

AU - Casey, Dympna

AU - Gallager, Niamh

AU - Devane, Declan

AU - Woods, Bob

AU - Murphy, Kathy

AU - Smyth, Siobhán

AU - Newell, John

AU - Murphy, Andrew W.

AU - Clarke, Charlotte

AU - Foley, Tony

AU - Timmons , Fergus

AU - Droes, Rose-Marie

AU - O'Halloran, Martin

AU - Windle, Gill

AU - Irving Lupton, Kate

AU - Domegan, CHristine

AU - O'Shea, Eamon

AU - Dolan, Pat

AU - Doyle, Priscilla

PY - 2020/11/16

Y1 - 2020/11/16

N2 - Background: A dementia diagnosis can prevent people from participating in society, leading to a further decline in cognitive, social and physical health. However, it may be possible for people with dementia to continue to live meaningful lives and continue to participate actively in society if a supportive psychosocial environment exists. Resilience theory, which focuses on strengthening personal attributes and external assets in the face of serious challenges, may provide a scaffold on which an inclusive multifaceted psychosocial supportive environment can be built. This protocol paper describes a study to determine the feasibility of conducting a multifaceted complex resilience building psychosocial intervention for people with dementia and their caregivers living in the community.Methods: This is a non-randomised feasibility study. Ten participants with dementia and their primary caregivers living in the community will be recruited and receive the CREST intervention. The intervention provides (a) a 7-week cognitive stimulation programme followed by an 8-week physical exercise programme for people with dementia and (b) a 6-week educational programme for caregivers. Members of the wider community will be invited to a dementia awarenessprogramme and GP practices to a dementia training workshop. Trained professionals will deliver all intervention components. Outcomes will assess the feasibility and acceptability of all study processes. The feasibility and acceptability of a range of outcomes to be collected in a future definitive trial, including economic measurements, will also be explored.Finally, social marketing will be used to map a route toward stigma change in dementia for use in a subsequent trial.Quantitative feasibility outcome assessments will be completed at baseline and after completion of the 15-week intervention while qualitative data will be collected at recruitment, baseline, during and post-intervention delivery.

AB - Background: A dementia diagnosis can prevent people from participating in society, leading to a further decline in cognitive, social and physical health. However, it may be possible for people with dementia to continue to live meaningful lives and continue to participate actively in society if a supportive psychosocial environment exists. Resilience theory, which focuses on strengthening personal attributes and external assets in the face of serious challenges, may provide a scaffold on which an inclusive multifaceted psychosocial supportive environment can be built. This protocol paper describes a study to determine the feasibility of conducting a multifaceted complex resilience building psychosocial intervention for people with dementia and their caregivers living in the community.Methods: This is a non-randomised feasibility study. Ten participants with dementia and their primary caregivers living in the community will be recruited and receive the CREST intervention. The intervention provides (a) a 7-week cognitive stimulation programme followed by an 8-week physical exercise programme for people with dementia and (b) a 6-week educational programme for caregivers. Members of the wider community will be invited to a dementia awarenessprogramme and GP practices to a dementia training workshop. Trained professionals will deliver all intervention components. Outcomes will assess the feasibility and acceptability of all study processes. The feasibility and acceptability of a range of outcomes to be collected in a future definitive trial, including economic measurements, will also be explored.Finally, social marketing will be used to map a route toward stigma change in dementia for use in a subsequent trial.Quantitative feasibility outcome assessments will be completed at baseline and after completion of the 15-week intervention while qualitative data will be collected at recruitment, baseline, during and post-intervention delivery.

U2 - 10.1186/s40814-020-00701-2

DO - 10.1186/s40814-020-00701-2

M3 - Article

VL - 6

SP - 1

EP - 16

JO - BMC Pilot and Feasibility Studies

JF - BMC Pilot and Feasibility Studies

IS - 177

M1 - 6

ER -