TY - JOUR

T1 - Towards an informed research agenda for the field of personality disorders by experts with lived and living experience and researchers

AU - 30 experts with lived experience – clients, relatives, significant others - from 10 European countries

AU - Renneberg, Babette

AU - Hutsebaut, Joost

AU - Berens, Ann

AU - De Panfilis, Chiara

AU - Bertsch, Katja

AU - Kaera, Andres

AU - Kramer, Ueli

AU - Schmahl, Christian

AU - Swales, Michaela

AU - Taubner, Svenja

AU - Alvarez, Mariana Mendoza

AU - Sieg, Julia

N1 - © 2024. The Author(s).

PY - 2024/7/8

Y1 - 2024/7/8

N2 - BACKGROUND: We describe a collection of themes for a research agenda for personality disorders that was originally formulated for the ESSPD Borderline Congress in 2022.METHODS: Experts with lived and living experience (EE), researchers and clinicians met virtually, exchanged ideas and discussed research topics for the field of personality disorders. The experts - patients, relatives, significant others - named the topics they thought most relevant for further research in the field. These topics were presented at the ESPPD conference in October 2022.RESULTS: The five top themes were: 1. Prevention, early detection and intervention, 2. Recovery beyond symptom improvement, 3. Involvement of relatives in treatment, 4. Gender dysphoria, and 5. Stigma.CONCLUSIONS: In general, the topics reflect current issues and changes in societal values. Overarching aims of research on these topics are the improvement of social participation and integration in society, better dissemination of research, and better information of the general public and political stakeholders.

AB - BACKGROUND: We describe a collection of themes for a research agenda for personality disorders that was originally formulated for the ESSPD Borderline Congress in 2022.METHODS: Experts with lived and living experience (EE), researchers and clinicians met virtually, exchanged ideas and discussed research topics for the field of personality disorders. The experts - patients, relatives, significant others - named the topics they thought most relevant for further research in the field. These topics were presented at the ESPPD conference in October 2022.RESULTS: The five top themes were: 1. Prevention, early detection and intervention, 2. Recovery beyond symptom improvement, 3. Involvement of relatives in treatment, 4. Gender dysphoria, and 5. Stigma.CONCLUSIONS: In general, the topics reflect current issues and changes in societal values. Overarching aims of research on these topics are the improvement of social participation and integration in society, better dissemination of research, and better information of the general public and political stakeholders.

KW - Experts with lived experience

KW - Public and patient involvement

KW - Personality disorder

U2 - 10.1186/s40479-024-00257-0

DO - 10.1186/s40479-024-00257-0

M3 - Article

C2 - 38973006

VL - 11

JO - Borderline Personality Disorder and Emotion Dysregulation

JF - Borderline Personality Disorder and Emotion Dysregulation

SN - 2051-6673

IS - 1

M1 - 14

ER -