TY - JOUR

T1 - What do people with dementia and their carers want to know about neuroimaging for dementia?

AU - Featherstone, Hannah

AU - Butler, Marie-Louise

AU - Ciblis, Aurelia

AU - Bokde, Arun L

AU - Mullins, Paul G

AU - McNulty, Jonathan P

N1 - © The Author(s) 2015.

PY - 2017/5

Y1 - 2017/5

N2 - Neuroimaging forms an important part of dementia diagnosis. Provision of information on neuroimaging to people with dementia and their carers may aid understanding of the pathological, physiological and psychosocial changes of the disease, and increase understanding of symptoms. This qualitative study aimed to investigate participants' knowledge of the dementia diagnosis pathway, their understanding of neuroimaging and its use in diagnosis, and to determine content requirements for a website providing neuroimaging information. Structured interviews and a focus group were conducted with carers and people with dementia. The findings demonstrate an unmet need for information on neuroimaging both before and after the examination. Carers were keen to know about neuroimaging at a practical and technical level to help avoid diagnosis denial. People with dementia requested greater information, but with a caveat to avoid overwhelming detail, and were less likely to favour an Internet resource.

AB - Neuroimaging forms an important part of dementia diagnosis. Provision of information on neuroimaging to people with dementia and their carers may aid understanding of the pathological, physiological and psychosocial changes of the disease, and increase understanding of symptoms. This qualitative study aimed to investigate participants' knowledge of the dementia diagnosis pathway, their understanding of neuroimaging and its use in diagnosis, and to determine content requirements for a website providing neuroimaging information. Structured interviews and a focus group were conducted with carers and people with dementia. The findings demonstrate an unmet need for information on neuroimaging both before and after the examination. Carers were keen to know about neuroimaging at a practical and technical level to help avoid diagnosis denial. People with dementia requested greater information, but with a caveat to avoid overwhelming detail, and were less likely to favour an Internet resource.

U2 - 10.1177/1471301215602576

DO - 10.1177/1471301215602576

M3 - Article

C2 - 26330384

VL - 16

SP - 461

EP - 470

JO - Dementia

JF - Dementia

SN - 1471-3012

IS - 4

ER -