TY - JOUR

T1 - Working with uncertainty: A grounded theory study of health-care professionals’ experiences of working with children and adolescents with chronic fatigue syndrome

AU - Marks, Megan R.

AU - Huws, Jacqueline

AU - Whitehead, Liz

PY - 2016/11/1

Y1 - 2016/11/1

N2 - This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic encephalomyelitis leads to ‘working with uncertainty’, whereby health-care professionals utilise previous experiences to make sense of the condition and inform their clinical practice. How health-care professionals make sense of chronic fatigue syndrome/myalgic encephalomyelitis may influence the labels given to young people and the interventions they receive. The findings provide insight into a currently understudied area, and highlight potential avenues for further research and clinical practice.

AB - This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic encephalomyelitis leads to ‘working with uncertainty’, whereby health-care professionals utilise previous experiences to make sense of the condition and inform their clinical practice. How health-care professionals make sense of chronic fatigue syndrome/myalgic encephalomyelitis may influence the labels given to young people and the interventions they receive. The findings provide insight into a currently understudied area, and highlight potential avenues for further research and clinical practice.

KW - Adolescence

KW - Children

KW - Chronic Fatigue Syndrome

KW - Grounded Theory

KW - Health Care

U2 - 10.1177/1359105315583367

DO - 10.1177/1359105315583367

M3 - Article

VL - 21

SP - 2658

EP - 2667

JO - Journal of Health Psychology

JF - Journal of Health Psychology

SN - 1359-1053

IS - 11

ER -