TY - JOUR

T1 - Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network

AU - Grindle, Corinna

AU - Roberts-Tyler, Emily

AU - Denne, Louise

AU - Sapiets, Suzi

AU - Apanasionok, Magda

AU - Hughes, Carl

AU - Hastings, Richard

AU - Gore, Nick

AU - Baker, Peter

AU - McDowell, Claire

PY - 2024/4/29

Y1 - 2024/4/29

N2 - Purpose: With a historic lack of attention to synthesis methods such as systematic review and meta-analysis and a lack of randomised controlled trials (RCTs), the evidence base for behavioural interventions for children and adults who are autistic or are diagnosed with developmental disabilities is patchy. The Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN), a network of like- minded researchers and practitioners across the UK, aims to address this. The purpose of this article is to describe the network's work and provide the context for the remaining articles in the special issue that exemplify network projects. Approach: In this case study paper, we describe how the SF-DDARIN works and is resourced, detailing the process used to maximise research opportunities by facilitating network members working together. We outline the progressive research steps that the SF- DDARIN has identified are needed to develop and improve the evidence base for behavioural interventions systematically and, with examples, describe how the network delivers these steps. Findings: Since its establishment in 2016, the SF-DDARIN network members have collectively worked on more than 53 projects involving over 50 researchers, had over 120 special schools contribute to projects, and have recruited over 500 participants. This has been achieved via funding from the Sharland Foundation, primarily to cover the staffing costs of a small support team and internship partnerships with external organisations. Some projects have attracted external funding.Originality: SF-DDARIN may provide an innovative, effective, and resource-efficient model for other groups seeking to develop and extend their evidence base in developmental disability research. Keywords: Evidence-based practice; developmental disabilities; behavioural interventions; research and impact. Article Classification: Research Feature

AB - Purpose: With a historic lack of attention to synthesis methods such as systematic review and meta-analysis and a lack of randomised controlled trials (RCTs), the evidence base for behavioural interventions for children and adults who are autistic or are diagnosed with developmental disabilities is patchy. The Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN), a network of like- minded researchers and practitioners across the UK, aims to address this. The purpose of this article is to describe the network's work and provide the context for the remaining articles in the special issue that exemplify network projects. Approach: In this case study paper, we describe how the SF-DDARIN works and is resourced, detailing the process used to maximise research opportunities by facilitating network members working together. We outline the progressive research steps that the SF- DDARIN has identified are needed to develop and improve the evidence base for behavioural interventions systematically and, with examples, describe how the network delivers these steps. Findings: Since its establishment in 2016, the SF-DDARIN network members have collectively worked on more than 53 projects involving over 50 researchers, had over 120 special schools contribute to projects, and have recruited over 500 participants. This has been achieved via funding from the Sharland Foundation, primarily to cover the staffing costs of a small support team and internship partnerships with external organisations. Some projects have attracted external funding.Originality: SF-DDARIN may provide an innovative, effective, and resource-efficient model for other groups seeking to develop and extend their evidence base in developmental disability research. Keywords: Evidence-based practice; developmental disabilities; behavioural interventions; research and impact. Article Classification: Research Feature

U2 - 10.1108/TLDR-08-2023-0018

DO - 10.1108/TLDR-08-2023-0018

M3 - Article

JO - Tizard Learning Disability Review

JF - Tizard Learning Disability Review

SN - 1359-5474

ER -