TY - JOUR

T1 - Evidence-based planning and costing palliative care services for children

T2 - novel multi-method epidemiological and economic exemplar

AU - Noyes, Jane

AU - Edwards, Rhiannon Tudor

AU - Hastings, Richard P

AU - Hain, Richard

AU - Totsika, Vasiliki

AU - Bennett, Virginia

AU - Hobson, Lucie

AU - Davies, Gareth R

AU - Humphreys, Ciarán

AU - Devins, Mary

AU - Spencer, Llinos Haf

AU - Lewis, Mary

PY - 2013/4/25

Y1 - 2013/4/25

N2 - Children’s palliative care is a relatively new clinical specialty. Its nature is multi-dimensional and its delivery necessarily multi-professional. Numerous diverse public and not-for-profit organisations typically provide services and support. Because services are not centrally coordinated, they are provided in a manner that is inconsistent and incoherent. Since the first children’s hospice opened in 1982, the epidemiology of life-limiting conditions has changed with more children living longer, and many requiring transfer to adult services. Very little is known about the number of children living within any given geographical locality, costs of care, or experiences of children with ongoing palliative care needs and their families. We integrated evidence, and undertook and used novel methodological epidemiological work to develop the first evidence-based and costed commissioning exemplar.

AB - Children’s palliative care is a relatively new clinical specialty. Its nature is multi-dimensional and its delivery necessarily multi-professional. Numerous diverse public and not-for-profit organisations typically provide services and support. Because services are not centrally coordinated, they are provided in a manner that is inconsistent and incoherent. Since the first children’s hospice opened in 1982, the epidemiology of life-limiting conditions has changed with more children living longer, and many requiring transfer to adult services. Very little is known about the number of children living within any given geographical locality, costs of care, or experiences of children with ongoing palliative care needs and their families. We integrated evidence, and undertook and used novel methodological epidemiological work to develop the first evidence-based and costed commissioning exemplar.

KW - Journal Article

U2 - 10.1186/1472-684X-12-18

DO - 10.1186/1472-684X-12-18

M3 - Article

C2 - 23617814

VL - 12

SP - Article 18

JO - BMC Palliative Care

JF - BMC Palliative Care

SN - 1472-684X

IS - 1

ER -