TY - JOUR

T1 - Getting back to life after stroke

T2 - Co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke

AU - Masterson Algar, Patricia

AU - Burton, Christopher

AU - Seddon, Diane

AU - Hoare, Zoe

AU - Morrison, Valerie

AU - Arthur, Calum

AU - Elghenzai, Salah

AU - Williams, Sion

AU - Radford, Kate

N1 - 2018 Taylor & Francis. This is the author accepted manuscript. The final version is available from Taylor & Francis via the DOI in this record

PY - 2020/5

Y1 - 2020/5

N2 - PurposeRebuilding one’s life after stroke is a key priority persistently identified by patients yet professionally led interventions have little impact. This co-design study constructs and tests a novel peer-led coaching intervention to improve post-stroke leisure and general social participation. MethodsThis study followed the principles of co-design by actively engaging and harnessing the knowledge of stroke survivors in order to develop and test a peer-lead coaching intervention. Phase 1 assessed function, mood and involvement in leisure and social activities six months following stroke (n=79). Phase 2 involved semi-structured, in-depth interviews with 18 stroke survivors and 10 family carers to explore experiences related to social and leisure participation. Phase 3 tested the co-designed peer-led coaching intervention. Data collected also included co-design feedback sessions and a training workshop with selected peer coaches and in addition, interviews with stroke survivors and their peer coaches at two time-points: following the training programme (n=5) and delivery of the intervention (n=2). Results A peer coaching intervention was successfully co-designed and tested combining the use of lay knowledge sociocognitive and self-regulatory theories with principles of transformational leadership theory. Both peers and stroke survivors reported having benefited at a personal level. ConclusionsThis study reports on an innovative community-based and peer-led intervention and its results have generated new evidence on how stroke survivors engage with and respond to peer coaching support. It further provides a theoretical platform for designing and implementing peer interventions. Hence, these results have the potential to inform the development of future peer coaching intervention not only for stroke rehabilitation but also for a wide range of chronic conditions.

AB - PurposeRebuilding one’s life after stroke is a key priority persistently identified by patients yet professionally led interventions have little impact. This co-design study constructs and tests a novel peer-led coaching intervention to improve post-stroke leisure and general social participation. MethodsThis study followed the principles of co-design by actively engaging and harnessing the knowledge of stroke survivors in order to develop and test a peer-lead coaching intervention. Phase 1 assessed function, mood and involvement in leisure and social activities six months following stroke (n=79). Phase 2 involved semi-structured, in-depth interviews with 18 stroke survivors and 10 family carers to explore experiences related to social and leisure participation. Phase 3 tested the co-designed peer-led coaching intervention. Data collected also included co-design feedback sessions and a training workshop with selected peer coaches and in addition, interviews with stroke survivors and their peer coaches at two time-points: following the training programme (n=5) and delivery of the intervention (n=2). Results A peer coaching intervention was successfully co-designed and tested combining the use of lay knowledge sociocognitive and self-regulatory theories with principles of transformational leadership theory. Both peers and stroke survivors reported having benefited at a personal level. ConclusionsThis study reports on an innovative community-based and peer-led intervention and its results have generated new evidence on how stroke survivors engage with and respond to peer coaching support. It further provides a theoretical platform for designing and implementing peer interventions. Hence, these results have the potential to inform the development of future peer coaching intervention not only for stroke rehabilitation but also for a wide range of chronic conditions.

KW - Stroke

KW - co-design

KW - community-based intervention

KW - peer coaching

KW - rehabilitation

KW - social and leisure activities

U2 - 10.1080/09638288.2018.1524521

DO - 10.1080/09638288.2018.1524521

M3 - Article

VL - 42

SP - 1359

EP - 1372

JO - Disability and Rehabilitation

JF - Disability and Rehabilitation

SN - 0963-8288

IS - 10

ER -