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Informal care for people with dementia in Europe

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Informal care for people with dementia in Europe. / Handels, Ron L.; Hataiyusuk, Somboon; Wimo, Anders et al.
In: Journal of Prevention of Alzheimer's Disease, Vol. 12, No. 1, 100015, 01.01.2025.

Research output: Contribution to journal › Article › peer-review

HarvardHarvard

Handels, RL, Hataiyusuk, S, Wimo, A, Skoldunger, A, Bakker, C, Bieber, A, Ciccone, A, Defanti, CA, Fabbo, A, Fascendini, S, Frolich, L, Gervès-Pinquié, C, Goncalves-Pereira, M, Irving, K, Koopmans, R, Mecocci, P, Merlo, P, Michalowsky, B, Peters, O, Pijnenburg, Y, Ribeiro, O, Selbaeck, G, Schwarzkopf, L, Verbeek, H, de Vugt, M, Woods, B, Zanetti, O, Winblad, B & Jönsson, L 2025, 'Informal care for people with dementia in Europe', Journal of Prevention of Alzheimer's Disease, vol. 12, no. 1, 100015. https://doi.org/10.1016/j.tjpad.2024.100015

APA

Handels, R. L., Hataiyusuk, S., Wimo, A., Skoldunger, A., Bakker, C., Bieber, A., Ciccone, A., Defanti, C. A., Fabbo, A., Fascendini, S., Frolich, L., Gervès-Pinquié, C., Goncalves-Pereira, M., Irving, K., Koopmans, R., Mecocci, P., Merlo, P., Michalowsky, B., Peters, O., ... Jönsson, L. (2025). Informal care for people with dementia in Europe. Journal of Prevention of Alzheimer's Disease, 12(1), Article 100015. https://doi.org/10.1016/j.tjpad.2024.100015

CBE

Handels RL, Hataiyusuk S, Wimo A, Skoldunger A, Bakker C, Bieber A, Ciccone A, Defanti CA, Fabbo A, Fascendini S, et al. 2025. Informal care for people with dementia in Europe. Journal of Prevention of Alzheimer's Disease. 12(1):Article 100015. https://doi.org/10.1016/j.tjpad.2024.100015

MLA

Handels, Ron L. et al. "Informal care for people with dementia in Europe". Journal of Prevention of Alzheimer's Disease. 2025. 12(1). https://doi.org/10.1016/j.tjpad.2024.100015

VancouverVancouver

Handels RL, Hataiyusuk S, Wimo A, Skoldunger A, Bakker C, Bieber A et al. Informal care for people with dementia in Europe. Journal of Prevention of Alzheimer's Disease. 2025 Jan 1;12(1):100015. doi: 10.1016/j.tjpad.2024.100015

Author

Handels, Ron L. ; Hataiyusuk, Somboon ; Wimo, Anders et al. / Informal care for people with dementia in Europe. In: Journal of Prevention of Alzheimer's Disease. 2025 ; Vol. 12, No. 1.

RIS

TY - JOUR

T1 - Informal care for people with dementia in Europe

AU - Handels, Ron L.

AU - Hataiyusuk, Somboon

AU - Wimo, Anders

AU - Skoldunger, Anders

AU - Bakker, Christian

AU - Bieber, Anja

AU - Ciccone, Alfonso

AU - Defanti, C A

AU - Fabbo, A

AU - Fascendini, S

AU - Frolich, L

AU - Gervès-Pinquié, C

AU - Goncalves-Pereira, Manuel

AU - Irving, Kate

AU - Koopmans, R

AU - Mecocci, P

AU - Merlo, P

AU - Michalowsky, B

AU - Peters, O

AU - Pijnenburg, Y

AU - Ribeiro, O

AU - Selbaeck, G.

AU - Schwarzkopf, L

AU - Verbeek, H.

AU - de Vugt, Marjolein

AU - Woods, Bob

AU - Zanetti, Orazio

AU - Winblad, B.

AU - Jönsson, L

PY - 2025/1/1

Y1 - 2025/1/1

N2 - IntroductionInformal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe.MethodsA secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or trial studies in community-dwelling persons with dementia. A mixed regression model was fitted to time spent on instrumental or basic activities of daily living using disease severity and demographic characteristics.ResultsDaily informal care time was 0.5 hours higher in moderate compared to mild and 1.3h higher in severe compared to mild cognitive impairment. Likewise, this was 1.2h and 2.7h for functional disability and 0.3h and 0.6h for behavioral symptoms in the same directions.DiscussionEstimates can be used in both single- and multi-domain health-economic models for dementia in European settings.

AB - IntroductionInformal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe.MethodsA secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or trial studies in community-dwelling persons with dementia. A mixed regression model was fitted to time spent on instrumental or basic activities of daily living using disease severity and demographic characteristics.ResultsDaily informal care time was 0.5 hours higher in moderate compared to mild and 1.3h higher in severe compared to mild cognitive impairment. Likewise, this was 1.2h and 2.7h for functional disability and 0.3h and 0.6h for behavioral symptoms in the same directions.DiscussionEstimates can be used in both single- and multi-domain health-economic models for dementia in European settings.

U2 - 10.1016/j.tjpad.2024.100015

DO - 10.1016/j.tjpad.2024.100015

M3 - Article

VL - 12

JO - Journal of Prevention of Alzheimer's Disease

JF - Journal of Prevention of Alzheimer's Disease

SN - 2274-5807

IS - 1

M1 - 100015

ER -