iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers
Research output: Contribution to journal › Article › peer-review
Electronic versions
Documents
- ijerph-20-00127
Final published version, 13.1 MB, PDF document
Licence: CC BY Show licence
DOI
Young dementia carers need to be recognised and supported in their role. They need help to understand the illness, what changes are expected and how it can affect their family member. Many support services, partly due to the COVID pandemic, have moved online and have been shown to be acceptable as they are low cost and reduce access barriers. iSupport is an evidence-informed e-health training programme developed by the World Health Organization (WHO) to support adult dementia carers. This paper reports on the co-design of an adapted version of iSupport for young carers. A theoretically driven co-design approach, drawing on the lived experiences of young dementia carers and experts who work with this target group was followed. As a result of this study iSupport for Young Carers was created. It is the first e-health intervention of its kind and aims to support the mental health, knowledge and skills of young dementia carers. In turn, it could improve the quality of the support that service providers can offer, and this can result in increased levels of identification of these young people. The work presented also provides opportunities for other countries and demographic groups to translate and adapt iSupport for Young Carers to their specific cultural context.
Keywords
- Adolescent, Adult, COVID-19, Caregivers, Co-design, Dementia, E-health, Humans, Mental Health, Telemedicine, Young Carer
Original language | English |
---|---|
Article number | 127 |
Pages (from-to) | 127 |
Number of pages | 1 |
Journal | International Journal of Environmental Research and Public Health |
Volume | 20 |
Issue number | 1 |
Early online date | 22 Dec 2022 |
DOIs | |
Publication status | Published - 22 Dec 2022 |
Prof. activities and awards (4)
Using art-based approaches to implement research co-design
Activity: Talk or presentation › Invited talk
iSupport for Young People: how can we support young people who live in families affected by dementia?
Activity: Talk or presentation › Invited talk
Panel discussion: Psychoeducation interventions for Dementia carers: iSupport
Activity: Talk or presentation › Invited talk