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  • Niels Janssen
    Maastricht University
  • Ron L. Handels
    Maastricht University
  • Sebastian Kohler
    Maastricht University
  • Manuel Gonçalves-Pereira
    Universidade Nova de Lisboa
  • Maria J. Marques
    Universidade Nova de Lisboa
  • Kate Irving
    Dublin City University
  • Louise Hopper
    Dublin City University
  • Anja Bieber
    Martin-Luther University, Halle-Wittenberg
  • Martin Orrell
    Nottingham University
  • Geir Selbæk
    Vestfold Hospital Trust, Tønsberg
  • Mona Michelet
    Vestfold Hospital Trust, Tønsberg
  • Anders Wimo
    Karolinska Institute, Stockholm
  • Orazio Zanetti
    IRCCS S. Giovanni di Dio “Fatebenefratelli”
  • Daniel M. Portolani
    IRCCS S. Giovanni di Dio “Fatebenefratelli”
  • Silvia M.A.A. Evers
    Maastricht University
  • Frans Verhey
    Maastricht University
  • Actifcare Consortium
Objectives
This exploratory study aimed at investigating profiles of care needs in people with mild to moderate dementia and examined variables associated with these profiles.
Design
A longitudinal international cohort study.
Setting and Participants
The baseline data of 447 community-dwelling dyads of people with dementia and their caregivers from the Access to Timely Formal Care (Actifcare) Study were included for analysis.

Methods
A latent class analysis was applied to identify profiles of needs, measured with the Camberwell Assessment of Need for the Elderly as rated by the caregiver. We examined sociodemographic (eg, relative stress scale) and clinical characteristics (eg, neuropsychiatric inventory) associated with these profiles.
Results
Four distinct need profiles were identified through latent class analysis. These comprised a “no need” profile (41% of the sample), a “met psychological needs” profile (25%), a “met social needs” profile (19%), and an “unmet social needs” profile (15%). A larger impact of caregiving on the caregiver's life as indicated by a higher relative stress scale score was associated with the “unmet social needs” profile.
Conclusions and Implications
In this large European sample, there was a subgroup of persons with dementia with high “unmet social needs” whose caregivers simultaneously perceived high stress in their caregiving tasks. Identification of these profiles may help provision of appropriate support for these people.
Original languageEnglish
Pages (from-to)1609-1616
JournalJournal of the American Medical Directors Association
Volume21
Issue number11
Early online date14 Jul 2020
DOIs
Publication statusPublished - 1 Nov 2020

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