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Reflections on my role as a mental health service user co-applicant in a randomized control trial

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Reflections on my role as a mental health service user co-applicant in a randomized control trial. / Lea, Laura ; Byford, Sarah; Coney, Yve et al.
In: Research for all, Vol. 4, No. 1, 01.02.2020, p. 33-46.

Research output: Contribution to journal › Article › peer-review

HarvardHarvard

Lea, L, Byford, S, Coney, Y, Crane, R, Fagabemi, N, Guerny, T, Leigh-Phippard, H, Rosten, C, Simms, K & Strauss, C 2020, 'Reflections on my role as a mental health service user co-applicant in a randomized control trial', Research for all, vol. 4, no. 1, pp. 33-46. https://doi.org/10.18546/RFA.04.1.04

APA

Lea, L., Byford, S., Coney, Y., Crane, R., Fagabemi, N., Guerny, T., Leigh-Phippard, H., Rosten, C., Simms, K., & Strauss, C. (2020). Reflections on my role as a mental health service user co-applicant in a randomized control trial. Research for all, 4(1), 33-46. https://doi.org/10.18546/RFA.04.1.04

CBE

Lea L, Byford S, Coney Y, Crane R, Fagabemi N, Guerny T, Leigh-Phippard H, Rosten C, Simms K, Strauss C. 2020. Reflections on my role as a mental health service user co-applicant in a randomized control trial. Research for all. 4(1):33-46. https://doi.org/10.18546/RFA.04.1.04

MLA

Lea, Laura et al. "Reflections on my role as a mental health service user co-applicant in a randomized control trial". Research for all. 2020, 4(1). 33-46. https://doi.org/10.18546/RFA.04.1.04

VancouverVancouver

Lea L, Byford S, Coney Y, Crane R, Fagabemi N, Guerny T et al. Reflections on my role as a mental health service user co-applicant in a randomized control trial. Research for all. 2020 Feb 1;4(1):33-46. doi: 10.18546/RFA.04.1.04

Author

Lea, Laura ; Byford, Sarah ; Coney, Yve et al. / Reflections on my role as a mental health service user co-applicant in a randomized control trial. In: Research for all. 2020 ; Vol. 4, No. 1. pp. 33-46.

RIS

TY - JOUR

T1 - Reflections on my role as a mental health service user co-applicant in a randomized control trial

AU - Lea, Laura

AU - Byford, Sarah

AU - Coney, Yve

AU - Crane, Rebecca

AU - Fagabemi, Natalia

AU - Guerny, Tony

AU - Leigh-Phippard, Helen

AU - Rosten, Claire

AU - Simms, Kate

AU - Strauss, Clara

PY - 2020/2/1

Y1 - 2020/2/1

N2 - This is not a research paper but a personal and collective reflection of patientand public involvement (PPI) for the LIGHTMind 2 randomized control trial(www.isrctn.com/ISRCTN13495752). This trial compares two guided self-helppsychological interventions for depression, and is delivered in the UK NHSImproving Access to Psychological Therapy services. The paper is the result of myreviewing our PPI 18 months into the trial. The PPI includes myself as a researchteam member and co-applicant, with lived experience of depression, mindfulnessand cognitive behaviour therapy. There is a Lived Experience Advisory Panel ofsix people with lived experience of depression or mindfulness, who advise theresearchers. Two people with lived experience of mental health difficulties andknowledge of PPI attend the Trial Steering Committee. This paper includescomments from some of the other people with lived experience and fromresearchers involved in the trial, included as co-authors.I offer the Johari window (Luft, 1970) and the 4Pi National InvolvementStandards (NSUN, 2018) as a way of positioning the value of PPI. Developingrelationships within PPI is identified as a way of moderating the fear that somepeople experience as they work with researchers. I describe the importance ofprinciples that incorporate explicit statements about the value of PPI.

AB - This is not a research paper but a personal and collective reflection of patientand public involvement (PPI) for the LIGHTMind 2 randomized control trial(www.isrctn.com/ISRCTN13495752). This trial compares two guided self-helppsychological interventions for depression, and is delivered in the UK NHSImproving Access to Psychological Therapy services. The paper is the result of myreviewing our PPI 18 months into the trial. The PPI includes myself as a researchteam member and co-applicant, with lived experience of depression, mindfulnessand cognitive behaviour therapy. There is a Lived Experience Advisory Panel ofsix people with lived experience of depression or mindfulness, who advise theresearchers. Two people with lived experience of mental health difficulties andknowledge of PPI attend the Trial Steering Committee. This paper includescomments from some of the other people with lived experience and fromresearchers involved in the trial, included as co-authors.I offer the Johari window (Luft, 1970) and the 4Pi National InvolvementStandards (NSUN, 2018) as a way of positioning the value of PPI. Developingrelationships within PPI is identified as a way of moderating the fear that somepeople experience as they work with researchers. I describe the importance ofprinciples that incorporate explicit statements about the value of PPI.

U2 - 10.18546/RFA.04.1.04

DO - 10.18546/RFA.04.1.04

M3 - Article

VL - 4

SP - 33

EP - 46

JO - Research for all

JF - Research for all

SN - 2399-8121

IS - 1

ER -