Relationship quality and sense of coherence in dementia: results of a European cohort study

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  • Maria J. Marques
    Universidade Nova de Lisboa
  • Robert Woods
  • Louise Hopper
    Dublin City University
  • Hannah Jelley
  • Kate Irving
    Dublin City University
  • Liselot Kerpershoek
    Maastricht University
  • Gabriele Meyer
    Martin-Luther University, Halle-Wittenberg
  • Anja Bieber
    Martin-Luther University, Halle-Wittenberg
  • Astrid Stephan
    Martin-Luther University, Halle-Wittenberg
  • Anders Skoldunger
    Karolinska Institute, Stockholm
  • Britt-Marie Sjölund
    Stockholm University
  • Geir Selbaek
    University of Oslo
  • Janne Rosvik
    Vestfold Hospital Trust, Tønsberg
  • Orazio Zanetti
    IRCCS S. Giovanni di Dio “Fatebenefratelli”
  • Elisa Portolani
    IRCCS S. Giovanni di Dio “Fatebenefratelli”
  • Marjolein de Vugt
    Maastricht University
  • Frans Verhey
    Maastricht University
  • Manuel Gonçalves-Pereira
    Universidade Nova de Lisboa
  • Consortium Actifcare
Quality of life of people with dementia and their family carers is strongly influenced by interpersonal issues and personal resources. In this context, relationship quality (RQ) and sense of coherence (SOC) potentially protect and promote health. We aimed to identify what influences RQ in dyads of people with dementia and their carers and to examine differences in their perspectives.
Cross‐sectional data were used from the Actifcare cohort study of 451 community‐dwelling people with dementia and their primary carers in eight European countries. Comprehensive assessments included the Positive Affect Index (RQ) and the Orientation to Life Questionnaire (SOC).
Regression analyses revealed that RQ as perceived by people with dementia was associated with carer education, stress, and spouse caregiving. RQ as perceived by carers was associated with carer stress, depression, being a spouse, social support, reported neuropsychiatric symptoms of dementia, and carer SOC. Neuropsychiatric symptoms and carer stress contributed to discrepancies in RQ ratings within the dyad. The only factor associated with both individual RQ ratings and discrepancies was carer stress (negative feelings subscore). No significant differences in the overall perception of RQ were evident between spouses and adult children carers, but RQ determinants differed between the two.
In this European sample, carer SOC was associated with carer‐reported RQ. RQ determinants differed according to the perspective considered (person with dementia or carer) and carer subgroup. A deeper understanding of RQ and its determinants will help to tailor interventions that address these distinct perspectives and potentially improve dementia outcomes.
Original languageEnglish
Pages (from-to)745-755
Number of pages11
JournalInternational Journal of Geriatric Psychiatry
Issue number5
Early online date7 Feb 2019
Publication statusPublished - May 2019

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