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DOI

  • Adam J. Noble
    University of Liverpool
  • Beth Morris
    University of Liverpool
  • Pete Dixon
    University of Liverpool
  • Amy Mathieson
    University of Liverpool
  • Leone Ridsdale
    King's College London
  • Myfanwy Morgan
    King's College London
  • Jon Dickson
    University of Sheffield
  • Steve Goodacre
    University of Sheffield
  • Mike Jackson
    North West Ambulance Service NHS Trust
  • Dyfrig Hughes
  • Anthony Marson
    University of Liverpool
  • Emily Holmes
Introduction
Adults presenting to the ambulance service for diagnosed epilepsy are often transported to emergency departments (EDs) despite no clinical need. An alternative care pathway (CP) could allow paramedics to divert them from ED and instigate ambulatory care improvements. To identify the most promising CP configuration for subsequent testing, the COLLABORATE project surveyed people with epilepsy and family/friends who had recently used the English ambulance service to elicit preferences for 288 CP configurations for different seizures. This allowed CPs to be ranked according to alignment with service users’ preferences. However, as well as being acceptable to users, a CP must be feasible. We thus engaged with paramedics, epilepsy specialists and commissioners to identify the optimal configuration.

Methods
Three Knowledge Exchange workshops completed. Participants considered COLLABORATE's evidence on service users’ preferences for the different configurations. Nominal group techniques elicited views on the feasibility of users’ preferences according to APEASE criteria. Workshop groups specified the configuration/s considered optimum. Qualitative data was analysed thematically. Utility to users of the specified CP configurations estimated using the COLLABORATE preference survey data.

Results
Twenty-seven participants found service users' preferences broadly feasible and outlined delivery recommendations. They identified enough commonality in preferences for different seizures to propose a single CP. Its configuration comprised: 1) patients staying where they were; 2) paramedics having access to medical records; 3) care episodes lasting <6 h; 4) paramedics receiving specialist advice on the day; 5) patient's GP being notified; and 6) a follow-up appointment being arranged with an epilepsy specialist. Preference data indicated higher utility for this configuration compared to current care.

Discussion
Stakeholders are of the view that the CP configuration favoured by service users could be NHS feasible. It should be developed and evaluated.

Keywords

  • Epilepsy, seizure, Ambulance, care pathway, preference, feasibility
Original languageEnglish
Pages (from-to)17-27
JournalSeizure: European Journal of Epilepsy
Volume118
Early online date11 Apr 2024
DOIs
Publication statusPublished - Apr 2024
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