Synthesis of health promotion concepts in children's palliative care

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DOI

  • Virginia Bennett
    University of Manchester
  • Richard Hain
  • Aaron Pritchard
  • Jane Noyes
Background: Palliative care improves the health of children with a life-limiting condition and appears to draw implicitly on concepts shared with a model of health promotion. However, to date there has been no scrutiny about how this relationship may shape understanding about children's palliative care.
Aim: To explore the influence of health promoting concepts on children's palliative care models, policies and guidelines.
Data sources: Health and social care databases were searched for policies, models and guidelines published between 2000-2018. Additional searches of professional national and international healthcare websites, children's palliative care charities and UK and Ireland government websites were conducted.
Methods: A best fit framework synthesis was used.
Findings: A total of 55 policies and guidelines were reviewed for the framework synthesis. Eight themes were generated: (1) health promoting children's palliative care policy and guidelines; (2) planning ahead; (3) creating a supportive environment; (4) enabling coping and independence; (5) reorienting children's palliative care sectors; (6) the lengthening trajectory of need for support; (7) strengthening community engagement in children's palliative care; and (8) quality of life and value-based ideologies.
Conclusion: The best fit framework synthesis confirmed a conceptual relationship between children's palliative care and health promotion. This is captured in a new model that will extend professionals' understanding.

Keywords

  • Child, Health Policy, Health Promotion, Humans, Ireland, Palliative Care, Quality of Life
Original languageEnglish
Pages (from-to)490-503
Number of pages14
JournalInternational Journal of Palliative Nursing
Volume27
Issue number10
Early online date2 Dec 2021
DOIs
Publication statusPublished - 17 Dec 2021

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