The experiences and views of parents who care for ventilator-dependent children

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  • J Noyes
  • H Hartmann
  • M Samuels
  • D Southall

Discussion in this paper is drawn from the literature examining the management of children with long-term assisted ventilation, and a study of parents' experiences and views of caring for their ventilator-dependent child at home. Difficulties in undertaking research into this group of children are highlighted. Recommendations are proposed regarding future multidisciplinary, multiagency service development in order to meet the needs of ventilator-dependent children and their families.

Keywords

  • Adaptation, Psychological, Adult, Attitude to Health, Caregivers, Child, Child, Preschool, Female, Germany, Home Nursing, Humans, Infant, Male, Needs Assessment, Nursing Methodology Research, Parents, Respiration, Artificial, Respiratory Insufficiency, Surveys and Questionnaires, United Kingdom, Journal Article
Original languageEnglish
Pages (from-to)440-50
Number of pages11
JournalJournal of Clinical Nursing
Volume8
Issue number4
DOIs
Publication statusPublished - Jul 1999
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