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  • Hannah Featherstone
    School of Medicine and Medical Science, University College Dublin, Ireland
  • Marie-Louise Butler
    School of Medicine and Medical Science, University College Dublin, Ireland
  • Aurelia Ciblis
    School of Medicine and Medical Science, University College Dublin, Ireland
  • Arun L Bokde
    School of Medicine and Trinity College Institute of Neuroscience, Trinity College Dublin, Ireland
  • Paul G Mullins
  • Jonathan P McNulty
    School of Medicine and Medical Science, University College Dublin, Ireland

Neuroimaging forms an important part of dementia diagnosis. Provision of information on neuroimaging to people with dementia and their carers may aid understanding of the pathological, physiological and psychosocial changes of the disease, and increase understanding of symptoms. This qualitative study aimed to investigate participants' knowledge of the dementia diagnosis pathway, their understanding of neuroimaging and its use in diagnosis, and to determine content requirements for a website providing neuroimaging information. Structured interviews and a focus group were conducted with carers and people with dementia. The findings demonstrate an unmet need for information on neuroimaging both before and after the examination. Carers were keen to know about neuroimaging at a practical and technical level to help avoid diagnosis denial. People with dementia requested greater information, but with a caveat to avoid overwhelming detail, and were less likely to favour an Internet resource.

Original languageEnglish
Pages (from-to)461-470
JournalDementia
Volume16
Issue number4
Early online date1 Sep 2015
DOIs
Publication statusPublished - May 2017

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