“He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research.
Allbwn ymchwil: Cyfraniad at gyfnodolyn › Erthygl › adolygiad gan gymheiriaid
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Yn: Journal of applied research in intellectual disabilities : JARID, 2013, t. 401-419.
Allbwn ymchwil: Cyfraniad at gyfnodolyn › Erthygl › adolygiad gan gymheiriaid
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TY - JOUR
T1 - “He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research.
AU - Griffith, Gemma
AU - Hastings, Richard
PY - 2013
Y1 - 2013
N2 - BackgroundThe purpose of this review is to synthesize the qualitative literature on the perspectives of those caring for a family member with intellectual disabilities and challenging behaviour, with a focus on their experiences of support services.Materials and MethodsA thorough literature search resulted in 17 studies being selected for inclusion in the meta-synthesis.ResultsFive primary themes were identified: (i) love, (ii) altered identity, (iii) crisis management, (iv) support is not just ‘challenging behaviour’ services, and (v) the future: low expectations, high hopes.ConclusionsCarers spoke of the deep love for their family member and of the chronic strain the demands of caregiving placed upon them. Support services often caused additional problems and high levels of stress for caregivers, although there were also reports of good practice. The findings may inform clinicians and service providers about how best to support families of individuals with challenging behaviour.
AB - BackgroundThe purpose of this review is to synthesize the qualitative literature on the perspectives of those caring for a family member with intellectual disabilities and challenging behaviour, with a focus on their experiences of support services.Materials and MethodsA thorough literature search resulted in 17 studies being selected for inclusion in the meta-synthesis.ResultsFive primary themes were identified: (i) love, (ii) altered identity, (iii) crisis management, (iv) support is not just ‘challenging behaviour’ services, and (v) the future: low expectations, high hopes.ConclusionsCarers spoke of the deep love for their family member and of the chronic strain the demands of caregiving placed upon them. Support services often caused additional problems and high levels of stress for caregivers, although there were also reports of good practice. The findings may inform clinicians and service providers about how best to support families of individuals with challenging behaviour.
U2 - 10.1111/jar.12073
DO - 10.1111/jar.12073
M3 - Article
SP - 401
EP - 419
JO - Journal of applied research in intellectual disabilities : JARID
JF - Journal of applied research in intellectual disabilities : JARID
SN - 1360-2322
ER -