Research Portal

“He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research.

Research output: Contribution to journal › Article › peer-review

Standard Standard

“He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research. / Griffith, Gemma; Hastings, Richard.
In: Journal of applied research in intellectual disabilities : JARID, 2013, p. 401-419.

Research output: Contribution to journal › Article › peer-review

HarvardHarvard

Griffith, G & Hastings, R 2013, '“He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research.', Journal of applied research in intellectual disabilities : JARID, pp. 401-419. https://doi.org/10.1111/jar.12073

APA

Griffith, G., & Hastings, R. (2013). “He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research. Journal of applied research in intellectual disabilities : JARID, 401-419. https://doi.org/10.1111/jar.12073

CBE

Griffith G, Hastings R. 2013. “He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research. Journal of applied research in intellectual disabilities : JARID. 401-419. https://doi.org/10.1111/jar.12073

MLA

Griffith, Gemma and Richard Hastings. "“He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research.". Journal of applied research in intellectual disabilities : JARID. 2013, 401-419. https://doi.org/10.1111/jar.12073

VancouverVancouver

Griffith G, Hastings R. “He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research. Journal of applied research in intellectual disabilities : JARID. 2013;401-419. doi: 10.1111/jar.12073

Author

Griffith, Gemma ; Hastings, Richard. / “He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research. In: Journal of applied research in intellectual disabilities : JARID. 2013 ; pp. 401-419.

RIS

TY - JOUR

T1 - “He’s hard work, but he’s worth it.” The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: A meta-synthesis of qualitative research.

AU - Griffith, Gemma

AU - Hastings, Richard

PY - 2013

Y1 - 2013

N2 - BackgroundThe purpose of this review is to synthesize the qualitative literature on the perspectives of those caring for a family member with intellectual disabilities and challenging behaviour, with a focus on their experiences of support services.Materials and MethodsA thorough literature search resulted in 17 studies being selected for inclusion in the meta-synthesis.ResultsFive primary themes were identified: (i) love, (ii) altered identity, (iii) crisis management, (iv) support is not just ‘challenging behaviour’ services, and (v) the future: low expectations, high hopes.ConclusionsCarers spoke of the deep love for their family member and of the chronic strain the demands of caregiving placed upon them. Support services often caused additional problems and high levels of stress for caregivers, although there were also reports of good practice. The findings may inform clinicians and service providers about how best to support families of individuals with challenging behaviour.

AB - BackgroundThe purpose of this review is to synthesize the qualitative literature on the perspectives of those caring for a family member with intellectual disabilities and challenging behaviour, with a focus on their experiences of support services.Materials and MethodsA thorough literature search resulted in 17 studies being selected for inclusion in the meta-synthesis.ResultsFive primary themes were identified: (i) love, (ii) altered identity, (iii) crisis management, (iv) support is not just ‘challenging behaviour’ services, and (v) the future: low expectations, high hopes.ConclusionsCarers spoke of the deep love for their family member and of the chronic strain the demands of caregiving placed upon them. Support services often caused additional problems and high levels of stress for caregivers, although there were also reports of good practice. The findings may inform clinicians and service providers about how best to support families of individuals with challenging behaviour.

U2 - 10.1111/jar.12073

DO - 10.1111/jar.12073

M3 - Article

SP - 401

EP - 419

JO - Journal of applied research in intellectual disabilities : JARID

JF - Journal of applied research in intellectual disabilities : JARID

SN - 1360-2322

ER -