Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'
Allbwn ymchwil: Cyfraniad at gyfnodolyn › Erthygl › adolygiad gan gymheiriaid
StandardStandard
Yn: BMC Palliative Care, Cyfrol 12, Rhif 5, 05.02.2013, t. 5.
Allbwn ymchwil: Cyfraniad at gyfnodolyn › Erthygl › adolygiad gan gymheiriaid
HarvardHarvard
APA
CBE
MLA
VancouverVancouver
Author
RIS
TY - JOUR
T1 - Planning ahead with children with life-limiting conditions and their families
T2 - development, implementation and evaluation of 'My Choices'
AU - Noyes, Jane
AU - Hastings, Richard P
AU - Lewis, Mary
AU - Hain, Richard
AU - Bennett, Virginia
AU - Hobson, Lucie
AU - Spencer, Llinos Haf
PY - 2013/2/5
Y1 - 2013/2/5
N2 - The United Kingdom has led the world in the development of children’s palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspect of children’s palliative care globally. This paper describes the development, implementation and evaluation of innovative child and parent-held palliative care planning resources. The resources were designed to facilitate parent and child thinking and engagement in future planning, and to determine care preferences and preferred locations of care for children with life-limiting conditions from diagnosis onwards. These resources fill a significant gap in palliative care planning before the end-of-life phase.
AB - The United Kingdom has led the world in the development of children’s palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspect of children’s palliative care globally. This paper describes the development, implementation and evaluation of innovative child and parent-held palliative care planning resources. The resources were designed to facilitate parent and child thinking and engagement in future planning, and to determine care preferences and preferred locations of care for children with life-limiting conditions from diagnosis onwards. These resources fill a significant gap in palliative care planning before the end-of-life phase.
KW - Journal Article
U2 - 10.1186/1472-684X-12-5
DO - 10.1186/1472-684X-12-5
M3 - Article
C2 - 23384400
VL - 12
SP - 5
JO - BMC Palliative Care
JF - BMC Palliative Care
SN - 1472-684X
IS - 5
ER -