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Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'

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Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'. / Noyes, Jane; Hastings, Richard P; Lewis, Mary et al.
In: BMC Palliative Care, Vol. 12, No. 5, 05.02.2013, p. 5.

Research output: Contribution to journal › Article › peer-review

HarvardHarvard

Noyes, J, Hastings, RP, Lewis, M, Hain, R, Bennett, V, Hobson, L & Spencer, LH 2013, 'Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'', BMC Palliative Care, vol. 12, no. 5, pp. 5. https://doi.org/10.1186/1472-684X-12-5, https://doi.org/10.1186/1472-684X-12-5

APA

Noyes, J., Hastings, R. P., Lewis, M., Hain, R., Bennett, V., Hobson, L., & Spencer, L. H. (2013). Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'. BMC Palliative Care, 12(5), 5. https://doi.org/10.1186/1472-684X-12-5, https://doi.org/10.1186/1472-684X-12-5

CBE

Noyes J, Hastings RP, Lewis M, Hain R, Bennett V, Hobson L, Spencer LH. 2013. Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'. BMC Palliative Care. 12(5):5. https://doi.org/10.1186/1472-684X-12-5, https://doi.org/10.1186/1472-684X-12-5

MLA

Noyes, Jane et al. "Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'". BMC Palliative Care. 2013, 12(5). 5. https://doi.org/10.1186/1472-684X-12-5, https://doi.org/10.1186/1472-684X-12-5

VancouverVancouver

Noyes J, Hastings RP, Lewis M, Hain R, Bennett V, Hobson L et al. Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of 'My Choices'. BMC Palliative Care. 2013 Feb 5;12(5):5. doi: 10.1186/1472-684X-12-5, 10.1186/1472-684X-12-5

Author

Noyes, Jane ; Hastings, Richard P ; Lewis, Mary et al. / Planning ahead with children with life-limiting conditions and their families : development, implementation and evaluation of 'My Choices'. In: BMC Palliative Care. 2013 ; Vol. 12, No. 5. pp. 5.

RIS

TY - JOUR

T1 - Planning ahead with children with life-limiting conditions and their families

T2 - development, implementation and evaluation of 'My Choices'

AU - Noyes, Jane

AU - Hastings, Richard P

AU - Lewis, Mary

AU - Hain, Richard

AU - Bennett, Virginia

AU - Hobson, Lucie

AU - Spencer, Llinos Haf

PY - 2013/2/5

Y1 - 2013/2/5

N2 - The United Kingdom has led the world in the development of children’s palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspect of children’s palliative care globally. This paper describes the development, implementation and evaluation of innovative child and parent-held palliative care planning resources. The resources were designed to facilitate parent and child thinking and engagement in future planning, and to determine care preferences and preferred locations of care for children with life-limiting conditions from diagnosis onwards. These resources fill a significant gap in palliative care planning before the end-of-life phase.

AB - The United Kingdom has led the world in the development of children’s palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspect of children’s palliative care globally. This paper describes the development, implementation and evaluation of innovative child and parent-held palliative care planning resources. The resources were designed to facilitate parent and child thinking and engagement in future planning, and to determine care preferences and preferred locations of care for children with life-limiting conditions from diagnosis onwards. These resources fill a significant gap in palliative care planning before the end-of-life phase.

KW - Journal Article

U2 - 10.1186/1472-684X-12-5

DO - 10.1186/1472-684X-12-5

M3 - Article

C2 - 23384400

VL - 12

SP - 5

JO - BMC Palliative Care

JF - BMC Palliative Care

SN - 1472-684X

IS - 5

ER -