Developing bi-lingual peer guides to living with dementia: the Knowledge is Power series

Electronic versions

Description

A diagnosis of dementia can be life-altering with post-diagnosis support advice often described as overwhelming or lacking. Recent research on resilience suggests that a sense of purpose and peer support contribute to a strengths-based approach. The Knowledge is Power series developed from discussions within a peer group of dementia advocates and educators working together to share important information and useful adaptations for people following a diagnosis of dementia to maintain or explore new interests. Human-centered design principles informed the creative process adopting four phases to Discover, Define, Develop, and Deliver the booklets. Members of Dementia Engagement and Empowerment Project (DEEP) groups across Wales were invited to suggest the content based on their own experiences and were instrumental in the booklet design and promotion. Academics and Graphic designers helped to format, translate, and distribute the booklets. Hard copies and online versions of the first bilingual Knowledge is Power 1 booklet in Wales (Welsh and English) have been distributed to health and social care practitioners, third-sector organisations, and members living with dementia. The second edition, “Knowledge is Power 2: Handy and helpful tips for day-to-day life with dementia” was completed in 2022. Feedback from the first edition informed a revised edition in 2023 with increasing demand for copies. A bilingual (Scottish Gaelic and English) booklet was subsequently created in Scotland highlighting the importance of providing information that is accessible and respects people's native language. Information on the process and feedback will be shared to support others that may wish to develop national post-diagnosis resources. This contributes to the process of co-creating support with rather than for people living with dementia.

18 Oct 2023

Event (Conference)

TitleAlzheimer's Europe- New opportunities in dementia care, policy and research
Period16/10/2318/10/23
Web address (URL)
CityHelsinki
Country/TerritoryFinland
Degree of recognitionInternational event

Event (Conference)

TitleAlzheimer's Europe- New opportunities in dementia care, policy and research
Date16/10/2318/10/23
Website
CityHelsinki
Country/TerritoryFinland
Degree of recognitionInternational event