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  • Craig A. Williams
    Exeter University
  • Alan R. Barker
    Exeter University
  • Sarah Denford
    Exeter University
  • Samantha B van Beurden
    Exeter University
  • May Silveira Bianchim
    University of Stirling
  • Jessica E Caterini
    The Hospital for Sick Children
  • Narelle S. Cox
    Monash University
  • Kelly Mackintosh
    Swansea University
  • Melitta A. McNarry
  • Sarah Rand
    UCL Great Ormond Street Institute of Child Health
  • Jane Schneiderman
    The Hospital for Sick Children
  • Greg D Wells
    The Hospital for Sick Children
  • Peter Anderson
    Royal Hospital for Children
  • Owen W Tomlinson
    Exeter University
Background
The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines.
Method
On 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement.
Results
The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements.
Conclusion
This consensus can be used to support health promotion by relevant stakeholders for people with CF.

Keywords

  • respiratory disease, Lifestyle, Health, clinical practice
Original languageEnglish
Number of pages11
JournalChronic Respiratory Disease
Volume19
Early online date6 Sept 2022
DOIs
Publication statusPublished - 19 Dec 2022
Externally publishedYes

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