TY - JOUR

T1 - The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus

AU - Williams, Craig A.

AU - Barker, Alan R.

AU - Denford , Sarah

AU - van Beurden, Samantha B

AU - Silveira Bianchim, May

AU - Caterini, Jessica E

AU - Cox, Narelle S.

AU - Mackintosh, Kelly

AU - McNarry, Melitta A.

AU - Rand, Sarah

AU - Schneiderman , Jane

AU - Wells, Greg D

AU - Anderson, Peter

AU - Tomlinson , Owen W

N1 - No date of acceptance

PY - 2022/12/19

Y1 - 2022/12/19

N2 - BackgroundThe roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines.MethodOn 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement.ResultsThe final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements.ConclusionThis consensus can be used to support health promotion by relevant stakeholders for people with CF.

AB - BackgroundThe roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines.MethodOn 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement.ResultsThe final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements.ConclusionThis consensus can be used to support health promotion by relevant stakeholders for people with CF.

KW - respiratory disease

KW - Lifestyle

KW - Health

KW - clinical practice

U2 - 10.1177/14799731221121670

DO - 10.1177/14799731221121670

M3 - Article

VL - 19

JO - Chronic Respiratory Disease

JF - Chronic Respiratory Disease

SN - 1479-9723

ER -