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"We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome

Research output: Contribution to journal › Article › peer-review

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"We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome. / Griffith, Gemma M; Totsika, Vasiliki; Nash, Susie et al.
In: Journal of Intellectual and Developmental Disability, Vol. 37, No. 3, 09.2012, p. 237-47.

Research output: Contribution to journal › Article › peer-review

HarvardHarvard

Griffith, GM, Totsika, V, Nash, S, Jones, R & Hastings, RP 2012, '"We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome', Journal of Intellectual and Developmental Disability, vol. 37, no. 3, pp. 237-47. https://doi.org/10.3109/13668250.2012.701729

APA

Griffith, G. M., Totsika, V., Nash, S., Jones, R., & Hastings, R. P. (2012). "We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome. Journal of Intellectual and Developmental Disability, 37(3), 237-47. https://doi.org/10.3109/13668250.2012.701729

CBE

Griffith GM, Totsika V, Nash S, Jones R, Hastings RP. 2012. "We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome. Journal of Intellectual and Developmental Disability. 37(3):237-47. https://doi.org/10.3109/13668250.2012.701729

MLA

Griffith, Gemma M et al. ""We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome". Journal of Intellectual and Developmental Disability. 2012, 37(3). 237-47. https://doi.org/10.3109/13668250.2012.701729

VancouverVancouver

Griffith GM, Totsika V, Nash S, Jones R, Hastings RP. "We are all there silently coping": The hidden experiences of parents of adults with Asperger syndrome. Journal of Intellectual and Developmental Disability. 2012 Sept;37(3):237-47. doi: 10.3109/13668250.2012.701729

Author

Griffith, Gemma M ; Totsika, Vasiliki ; Nash, Susie et al. / "We are all there silently coping" : The hidden experiences of parents of adults with Asperger syndrome. In: Journal of Intellectual and Developmental Disability. 2012 ; Vol. 37, No. 3. pp. 237-47.

RIS

TY - JOUR

T1 - "We are all there silently coping"

T2 - The hidden experiences of parents of adults with Asperger syndrome

AU - Griffith, Gemma M

AU - Totsika, Vasiliki

AU - Nash, Susie

AU - Jones, Robert

AU - Hastings, Richard P

PY - 2012/9

Y1 - 2012/9

N2 - BACKGROUND: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.METHOD: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).RESULTS: Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.CONCLUSIONS: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.

AB - BACKGROUND: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.METHOD: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).RESULTS: Six themes emerged from the analysis: (a) providers of "hidden" support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.CONCLUSIONS: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.

KW - Adaptation, Psychological

KW - Adult

KW - Adult Children

KW - Aged

KW - Asperger Syndrome

KW - Family

KW - Female

KW - Humans

KW - Interpersonal Relations

KW - Interviews as Topic

KW - Male

KW - Middle Aged

KW - Parents

KW - Qualitative Research

KW - Quality of Life

KW - Social Isolation

KW - Social Support

KW - Socioeconomic Factors

KW - Stress, Psychological

KW - Journal Article

KW - Research Support, Non-U.S. Gov't

U2 - 10.3109/13668250.2012.701729

DO - 10.3109/13668250.2012.701729

M3 - Article

C2 - 22852754

VL - 37

SP - 237

EP - 247

JO - Journal of Intellectual and Developmental Disability

JF - Journal of Intellectual and Developmental Disability

SN - 1366-8250

IS - 3

ER -