1. 2024
2. Published

   ‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry.

   Camic, P., Sullivan, M. P., Harding, E., Rossi-Harries, S., Grillo, A., McKee-Jackson, R., Stott, J., Brotherhood, E., Windle, G. & Crutch, S., 17 Feb 2024, In: Healthcare. 12, 4, 485.

   Research output: Contribution to journal › Article › peer-review

3. Published

   The Diagnostic Pathway Experiences of People Living with Rare Dementia and Their Family Caregivers: A Cross-Sectional Mixed Methods Study Using Qualitative and Economic Analyses

   Davies Abbott, I., Anthony, B., Jackson, K., Windle, G. & Edwards, R. T., 16 Feb 2024, In: International Journal of Environmental Research and Public Health. 21, 2, 231.

   Research output: Contribution to journal › Article › peer-review

4. 2023
5. Published

   Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias

   Naunton Morgan, B., Windle, G., Lamers, C., Brotherhood, E. & Crutch, S., 28 Dec 2023, In: International Journal of Environmental Research and Public Health. 21, 1, 19 p., 47.

   Research output: Contribution to journal › Article › peer-review

6. Published

   'I have never bounced back': resilience and living with dementia

   Windle, G., Roberts, J., MacLeod, C., Algar-Skaife, K., Sullivan, M. P., Brotherhood, E., Jones, C. H. & Stott, J., 2 Dec 2023, In: Aging and Mental Health. 27, 12, p. 2355-2367 13 p.

   Research output: Contribution to journal › Article › peer-review

7. Published

   Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers

   Masterson Algar, P., Egan, K., Flynn, G., Hughes, G., Spector, A., Stott, J. & Windle, G., 23 Nov 2023, In: International Journal of Environmental Research and Public Health. 20, 23, 15 p., 7103.

   Research output: Contribution to journal › Article › peer-review

8. Published

   Knowledge Is Power: Utilizing Human-Centered Design Principles with People Living with Dementia to Co-Design a Resource and Share Knowledge with Peers

   Roberts, J., Jones, C. H. & Windle, G., 18 Oct 2023, In: International Journal of Environmental Research and Public Health. 20, 20, 6937.

   Research output: Contribution to journal › Article › peer-review

9. Published

   Better Living with Non‑memory‑led Dementia: protocol for a feasibility randomised controlled trial of a web‑based caregiver educational programme

   Suárez‑González, A., John, A., Brotherhood, E., Camic, P., McKee‐Jackson, R., Melville, M., Sullivan, M. P., Edwards, R. T., Windle, G., Crutch, S., Hoare, Z. & Stott, J., 11 Oct 2023, In: Pilot and Feasibility Studies. 9, 1, 13 p., 172.

   Research output: Contribution to journal › Article › peer-review

10. Published

    Situating support for people living with rarer forms of dementia

    Sullivan, M. P., Camic, P., Harding, E., Stott, J., Windle, G., Grillo, A. & Crutch, S., 6 Oct 2023, In: BMC Geriatrics. 23, 1, p. 627 627.

    Research output: Contribution to journal › Article › peer-review

11. Published

    Developing bi-lingual peer guides to living with dementia: the Knowledge is Power series

    Jones, C. H., Roberts, J., Caulfield, M. & Windle, G., Oct 2023.

    Research output: Contribution to conference › Paper › peer-review

12. Published

    Development of an item pool for a patient reported outcome measure of resilience for people living with dementia

    Roberts, J., MacLeod, C., Hoare, Z., Sullivan, M. P., Brotherhood, E., Stott, J. & Windle, G., 27 Sept 2023, In: Journal of Patient Reported Outcomes. 7, 1, 96.

    Research output: Contribution to journal › Article › peer-review

13. E-pub ahead of print

    ‘The oxygen of shared experience’: exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias

    Harding, E., Harries, S., Alterkawi, S., Waddington, C., Grillo, A., Wood, O., Brotherhood, E., Windle, G., Sullivan, M. P., Camic, P., Stott, J. & Crutch, S., 31 Mar 2023, (E-pub ahead of print) In: Aging and Mental Health. 17 p.

    Research output: Contribution to journal › Article › peer-review

14. E-pub ahead of print

    Dementia in rural settings: A scoping review exploring the personal experiences of people with dementia and their carers

    Williams, J., Windle, G., Story, A., Brotherhood, E., Camic, P., Crutch, S., Stott, J., Sullivan, M. P. & Grillo, A., 8 Mar 2023, (E-pub ahead of print) In: Ageing and Society. 30 p.

    Research output: Contribution to journal › Article › peer-review

15. Published

    From deficits to possibilities: the role of resilience

    Windle, G. & Roberts, J., 1 Mar 2023, In: Journal of Dementia Care. 21, 2, p. 33-35

    Research output: Contribution to journal › Article › peer-review

16. Published

    Adapting the World Health Organisation’s ‘iSupport’ for Young Dementia Carers

    Masterson Algar, P. & Windle, G., 2 Feb 2023, p. 34.

    Research output: Contribution to conference › Abstract › peer-review

17. 2022
18. Published

    iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers

    Masterson-Algar, P., Egan, K., Flynn, G., Hughes, G., Spector, A., Stott, J. & Windle, G., 22 Dec 2022, In: International Journal of Environmental Research and Public Health. 20, 1, p. 127 1 p., 127.

    Research output: Contribution to journal › Article › peer-review

19. Published

    A systematic review and psychometric evaluation of resilience measurement scales for people living with dementia and their carers

    Windle, G., MacLeod, C., Algar-Skaife, K., Stott, J., Waddington, C., Camic, P., Sullivan, M. P., Brotherhood, E. & Crutch, S., 19 Nov 2022, In: BMC Medical Research Methodology. 22, 41 p., 298.

    Research output: Contribution to journal › Article › peer-review

20. Published

    Peer support for people living with rare or young onset dementia: An integrative review

    Sullivan, M. P., Williams, V., Grillo, A., Mackee-Jackson, R., Camic, P., Windle, G., Stott, J., Brotherhood, E. & Crutch, S., Nov 2022, In: Dementia: the international journal of social research and practice. 21, 8, p. 2700–2726 27 p.

    Research output: Contribution to journal › Article › peer-review

21. Published

    A qualitative systematic review of the role of families in supporting communication in people with dementia.

    Braithwaite- Stewart, L., Jones, C. H. & Windle, G., 23 Sept 2022, In: International Journal of Language and Communication Disorders. 57, 5, p. 1130-1153

    Research output: Contribution to journal › Article › peer-review

22. Published

    Effects of an e-health intervention 'iSupport' for reducing distress of dementia carers: protocol for a randomised controlled trial and feasibility study

    Windle, G., Flynn, G., Hoare, Z., Masterson-Algar, P., Egan, K., Edwards, R. T., Jones, C., Spector, A., Algar-Skaife, K., Hughes, G., Brocklehurst, P., Goulden, N., Skelhorn, D. & Stott, J., 21 Sept 2022, In: BMJ Open. 12, 9, p. e064314

    Research output: Contribution to journal › Article › peer-review

23. Published

    eHealth and Web-Based Interventions for Informal Carers of People With Dementia in the Community: Umbrella Review

    Naughton Morgan, B., Windle, G., Sharp, R. & Lamers, C., 22 Jul 2022, In: Journal of Medical Internet Research. 24, 7, 15 p., e36727.

    Research output: Contribution to journal › Article › peer-review

24. Published

    The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

    Waddington, C., Harding, E., Brotherhood, E., Davies Abbott, I., Barker, S., Camic, P., Ezeofor, V., Gardner, H., Grillo, A., Hardy, C., Hoare, Z., McKee-Jackson, R., Moore, K., O'Hara, T., Roberts, J., Rossi-Harries, S., Suarez-Gonzalez, A., Sullivan, M. P., Edwards, R. T., Van Der Byl Williams, M., Walton, J., Willoughby, A., Windle, G., Winrow, E., Wood, O., Zimmermann, N., Crutch, S. & Stott, J., 20 Jul 2022, In: JMIR Research Protocols. 11, 7, 13 p.

    Research output: Contribution to journal › Article › peer-review

25. Published

    The Development of Virtual Videoconference-Based Support for People Living with Rare Dementias and Their Carers: Protocol for Support Group Evaluation

    Waddington, C., Harding, E., Brotherhood, E., Davies Abbott, I., Barker, S., Camic, P. M., Ezeofor, V., Gardner, H., Grillo, A., Hardy, C., Hoare, Z., McKee-Jackson, R., Moore, K., O'Hara, T., Roberts, J., Rossi-Harries, S., Saurez-Gonzalez, A., Pat Sullivan, M., Edwards, R. T., Van Der Byl Williams, M., Walton, J., Willoughby, A., Windle, G., Winrow, E., Wood, O., Zimmermann, N., Crutch, S. J. & Stott, J., 20 Jul 2022, In: JMIR Research Protocols. 11, 7

    Research output: Contribution to journal › Article › peer-review

26. Published

    When One Health Meets the United Nations Ocean Decade: Global Agendas as a Pathway to Promote Collaborative Interdisciplinary Research on Human-Nature Relationships

    Masterson Algar, P., Jenkins, S., Windle, G., Morris-Webb, E., Takahashi, C. K., Burke, T., Rosa, I., Martinez, A. S., Torres-Mattos, E. B., Taddei, R., Morrison, V., Kasten, P., Bryning, L., Cruz de Oliveira, N. R., Gonçalves, L. R., Skov, M., Beynon-Davies, C., Bumbeer, J., Saldiva, P. H. N., Leão, E. & Christofoletti, R., 6 Apr 2022, In: Frontiers in Psychology. 13, 809009.

    Research output: Contribution to journal › Article › peer-review

27. Published

    New insights into the genetic etiology of Alzheimer’s disease and related dementias

    EADB, GR@ACE, DEGESCO, EADI, GERAD, Demgene, FinnGen, ADGC, CHARGE, Bellenguez, C., MacLeod, C. A., Windle, G., Woods, B., Farrer, L. A., Psaty, B. M., Ghanbari, M., Raj, T., Sachdev, P., Mather, K., Jessen, F., Ikram, M. A., de Mendonça, A., Hort, J., Tsolaki, M., Pericak-Vance, M. A., Amouyel, P., Williams, J., Frikke-Schmidt, R., Clarimón, J., Deleuze, J-F., Rossi, G., Seshadri, S., Andreassen, O. A., Ingelsson, M., Hiltunen, M., Sleegers, K., Schellenberg, G. D., van Duijn, C. M., Sims, R., van der Flier, W. M., Ruiz, A., Ramirez, A. & Lambert, J-C., Apr 2022, In: Nature Genetics. 54, 4, p. 412-436 25 p.

    Research output: Contribution to journal › Article › peer-review

28. Published

    Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review

    Masterson Algar, P., Hyde, M., Cheshire Allen, M., Keating, N. & Windle, G., 1 Feb 2022, In: Dementia: International Journal of Social Research and Practice. 21, 2, p. 648-676 29 p.

    Research output: Contribution to journal › Review article › peer-review